Patient Reported Data

Interventions supporting long term adherence and decreasing cardiovascular events after myocardial infarction (ISLAND): pragmatic randomised controlled trial | BMJ | 6/10/2020

… summaries varies widely even within the same institution. Summaries often lack necessary recommendations for long term treatment. 22 Data collection Study data were obtained from two sources—namely, patient self-report and administrative data. Patient reported data were collected explicitly for this trial through telephone calls by blinded research staff with study participants at 12 months from baseline. During these calls, the adherence of participants to secondary prevention treatments after …

Racing for a COVID-19 Vaccine: Ensuring eCOA Data Quality When Time is of Essence | 3/24/2020

… the National Institute of Allergy and Infectious Diseases (NIAID), but results are still many months away. The acute time pressures that vaccine trials typically have are now in hyper speed. Traditionally in vaccine trials, patient reported data are collected via paper based assessments and symptom diary cards. This approach, however, is often more costly, error-prone, and cumbersome to both patients and sites, especially considering that global vaccine programs are …

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Consumers Should Control Their Data, and TimiHealth Blockchain Ecosystem Makes It Happen | PR Newswire | 1/15/2020

… Data type 2012 - DECODE sold data to Amgen Unit quantity: 300,000 Price per unit: $1,383 Genomics data & Medical Records 2015 - 23andMe sold data to Genentech Unit quantity: 3,000 Price per unit: $20,000 Genomics data & Patient reported data 2015 - AncestryDNA sold data to Calico Unknown Unknown 2018 - 23andMe sold data to GSK Unit quantity: 4,000,000 Price per unit: $75 Genomics data & Surveys (includes 4 year exclusive access to data) 2018 - Genomic …

Bonner County Daily Bee - Business, Consumers Should Control Their Data, and TimiHealth Blockchain Ecosystem Makes It Happen | 1/15/2020

2012 - DECODE sold data to Amgen Unit quantity: 300,000 2015 - 23andMe sold data to Genentech Unit quantity: 3,000 Genomics data & Patient reported data 2015 - AncestryDNA sold data to Calico Unknown 2018 - 23andMe sold data to GSK Unit quantity: 4,000,000 Genomics data & Surveys (includes 4 year exclusive access to data) 2018 - Genomic Medicine Ireland sold data to WuXi Nextcode Unit quantity: 400,000 Genomics data & Medical Records Millions of people pay direct …

Datatrak International, Inc. Reports Third Quarter Results of 2019 | PR Newswire | 11/6/2019

… what we believe is the first Image Endpoint and Adverse Event Adjudication capabilities within EDC. We’re now bringing Datatrak Direct to market, expanding our Enterprise Cloud with the ability to reach out and collect patient reported data directly from the patient and wearable devices. Our Sponsor clients are now looking at the future of clinical research using our platform to perform Virtual Trials. We anticipate that the new world of …

We Can Still Talk to The Patient By Henriette Langstrup | 9/30/2019

… to the patient!” - Negotiating the narrative power of patient reported data. 7th International Conference on Infrastructures in Healthcare, DOI: 10.18420/ihc2019_012“We can still talk to the patient!” Negotiating the narrative power of patient reported data Center for Medical Science and Technology Studie … See more , Department of Public Abstract. Patient Reported Outcome data (PRO data) are standardized questionnaire data on patients’ own experience of their health and quality of …

Patient’s Perception of Non-Motor and Motor Function Successfully Models Parkinson’s Disease Severity | PRWeb | 9/23/2019

… as rated by examiners, according to a new study released today at the International Congress of Parkinson’s Disease and Movement Disorders®. There is increased interest from clinical and regulatory bodies when it comes to patient reported data and its relationship to clinician administered measures of Parkinson’s disease (PD) severity. Understanding the specific self-reported non-motor and motor functional impairments that contribute to PD severity is important to treatment efforts …

Sailormen Inc. Popeyes Raised $680,000 during 15th Annual Golf Classic and Appetite for a Cure Campaign for Lifesaving Work of Muscular Dystrophy Association | PR Newswire | 6/17/2019

… discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top …

AHRQ Awards Grant to U of Iowa to Research Health Data Exchange | EHR Intelligence | 6/5/2019

… adopted throughout the U.S. health care system, and they are changing the way health care professionals deliver care and communicate with each other,” said Zhu. Dig Deeper AHRQ Challenge to Enable EHR Integration of Patient Reported Data “Today’s health care professionals often work as virtual care teams – a variety of practitioners providing care to the same patients, but working at different times and locations – all connected through the EHR,” he …

Muscular Dystrophy Association Awards 26 Grants Totaling More Than $7.5 Million for Neuromuscular Disease Research | PR Newswire | 5/14/2019

… discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top …

Drink One for Dane: Dutch Bros and Customers Team Up With Muscular Dystrophy Association to Accelerate Research for Treatments and Cures for ALS | PRWeb | 5/6/2019

… discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top …