Patient Reported Data

Selected news for Patient Reported Data, representing 35% of data collected since 5/2019. Recent stories appear in PR Newswire and PRWeb. We are still establishing shared news links for this healthcare topic.

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Date Headline (link) Source Relevant Snippet
8/26/2020 Cytokinetics and Cure SMA Renew Partnership to Advance Education and Awareness of SMA Globe Newswire ... pharmaceutical companies, Cure SMA, and other non-profit organizations, to address critical issues related to advancing drug development in SMA. Cytokinetics is actively involved in topic groups focused on regulatory affairs, clinical trials and patient reported data . “Despite our events being entirely virtual due to the coronavirus pandemic, we are incredibly grateful to have continued support from Cytokinetics,” said Kenneth Hobby, President of Cure SMA. “We have seen significant progress ...
8/26/2020 Cytokinetics and Cure SMA Renew Partnership to Advance Education and Awareness of SMA Benzinga ... pharmaceutical companies, Cure SMA, and other non-profit organizations, to address critical issues related to advancing drug development in SMA. Cytokinetics is actively involved in topic groups focused on regulatory affairs, clinical trials and patient reported data . "Despite our events being entirely virtual due to the coronavirus pandemic, we are incredibly grateful to have continued support from Cytokinetics," said Kenneth Hobby, President of Cure SMA. "We have seen significant progress ...
8/26/2020 Cytokinetics and Cure SMA Renew Partnership to Advance Education and Awareness of SMA BioSpace ... pharmaceutical companies, Cure SMA, and other non-profit organizations, to address critical issues related to advancing drug development in SMA. Cytokinetics is actively involved in topic groups focused on regulatory affairs, clinical trials and patient reported data . “Despite our events being entirely virtual due to the coronavirus pandemic, we are incredibly grateful to have continued support from Cytokinetics,” said Kenneth Hobby, President of Cure SMA. “We have seen significant progress ...
8/26/2020 Cytokinetics and Cure SMA Renew Partnership to Advance Education and Awareness of SMA biomedreports.com ... pharmaceutical companies, Cure SMA, and other non-profit organizations, to address critical issues related to advancing drug development in SMA. Cytokinetics is actively involved in topic groups focused on regulatory affairs, clinical trials and patient reported data . “Despite our events being entirely virtual due to the coronavirus pandemic, we are incredibly grateful to have continued support from Cytokinetics,” said Kenneth Hobby, President of Cure SMA. “We have seen significant progress ...
8/26/2020 Cytokinetics and Cure SMA Renew Partnership to Advance Education and Awareness of SMA gurufocus.com ... pharmaceutical companies, Cure SMA, and other non-profit organizations, to address critical issues related to advancing drug development in SMA. Cytokinetics is actively involved in topic groups focused on regulatory affairs, clinical trials and patient reported data . “Despite our events being entirely virtual due to the coronavirus pandemic, we are incredibly grateful to have continued support from Cytokinetics,” said Kenneth Hobby, President of Cure SMA. “We have seen significant progress ...
6/10/2020 Interventions supporting long term adherence and decreasing cardiovascular events after myocardial infarction (ISLAND): pragmatic randomised controlled trial BMJ ... summaries varies widely even within the same institution. Summaries often lack necessary recommendations for long term treatment. 22 Data collection Study data were obtained from two sources—namely, patient self-report and administrative data. Patient reported data were collected explicitly for this trial through telephone calls by blinded research staff with study participants at 12 months from baseline. During these calls, the adherence of participants to secondary prevention treatments after ...
3/24/2020 Racing for a COVID-19 Vaccine: Ensuring eCOA Data Quality When Time is of Essence ert.com ... the National Institute of Allergy and Infectious Diseases (NIAID), but results are still many months away. The acute time pressures that vaccine trials typically have are now in hyper speed. Traditionally in vaccine trials, patient reported data are collected via paper based assessments and symptom diary cards. This approach, however, is often more costly, error-prone, and cumbersome to both patients and sites, especially considering that global vaccine programs are ...
1/15/2020 Consumers Should Control Their Data, and TimiHealth Blockchain Ecosystem Makes It Happen PR Newswire ... Data type 2012 - DECODE sold data to Amgen Unit quantity: 300,000 Price per unit: $1,383 Genomics data & Medical Records 2015 - 23andMe sold data to Genentech Unit quantity: 3,000 Price per unit: $20,000 Genomics data & Patient reported data 2015 - AncestryDNA sold data to Calico Unknown Unknown 2018 - 23andMe sold data to GSK Unit quantity: 4,000,000 Price per unit: $75 Genomics data & Surveys (includes 4 year exclusive access to data) 2018 - Genomic ...
1/15/2020 Bonner County Daily Bee - Business, Consumers Should Control Their Data, and TimiHealth Blockchain Ecosystem Makes It Happen bonnercountydailybee.com 2012 - DECODE sold data to Amgen Unit quantity: 300,000 2015 - 23andMe sold data to Genentech Unit quantity: 3,000 Genomics data & Patient reported data 2015 - AncestryDNA sold data to Calico Unknown 2018 - 23andMe sold data to GSK Unit quantity: 4,000,000 Genomics data & Surveys (includes 4 year exclusive access to data) 2018 - Genomic Medicine Ireland sold data to WuXi Nextcode Unit quantity: 400,000 Genomics data & Medical Records Millions of people pay direct ...
12/20/2019 Senior / Principal Data Scientist - Neuroscience Analytics, Personalized Healthcare : South San Francisco gene.com ... care and access. You would have the primary responsibility to design and implement analyses using a variety of data sources such as electronic medical records, insurance claims, patient registries, clinical trials, genomics, imaging and patient reported data (surveys, digital etc.). You will collaborate with peers within the global product development function and other teams located around the world to support evidence generation strategies, identify evidence gaps and perform evaluation on ...
12/19/2019 Senior / Principal Data Scientist - Neurology Analytics, Personalized Healthcare : South San Francisco gene.com ... care and access. You would have the primary responsibility to design and implement analyses using a variety of data sources such as electronic medical records, insurance claims, patient registries, clinical trials, genomics, imaging and patient reported data (surveys, digital etc.). You will collaborate with peers within the global product development function and other teams located around the world to support evidence generation strategies, identify evidence gaps and perform evaluation on ...
11/6/2019 Datatrak International, Inc. Reports Third Quarter Results of 2019 PR Newswire ... what we believe is the first Image Endpoint and Adverse Event Adjudication capabilities within EDC. We're now bringing Datatrak Direct to market, expanding our Enterprise Cloud with the ability to reach out and collect patient reported data directly from the patient and wearable devices. Our Sponsor clients are now looking at the future of clinical research using our platform to perform Virtual Trials. We anticipate that the new world of ...
11/4/2019 Research Assistant (Clinical) - Phoenix, AZ (Central) - Phoenix, AZ, , USA #jobs #Phoenix pls RT climber.com ... and adherence to the clinical research protocol and national and local milestones regarding planning, administration, timeline management, enrollment, participant engagement, specimen and data collection, and reporting. Responsibilities: t+ Perform recruitment, informed consent, collection of patient reported data , compliance with study procedures, data collection and documentation, and work closely with the study team and clinical partnerst+ Follow plans and standard operating procedures under the guidance of study leadership to recruit, enroll ...
9/30/2019 We Can Still Talk to The Patient By Henriette Langstrup wesrch.com ... to the patient!” - Negotiating the narrative power of patient reported data. 7th International Conference on Infrastructures in Healthcare, DOI: 10.18420/ihc2019_012“We can still talk to the patient!” Negotiating the narrative power of patient reported data Center for Medical Science and Technology Studie ... See more , Department of Public Abstract. Patient Reported Outcome data (PRO data) are standardized questionnaire data on patients’ own experience of their health and quality of ...
9/23/2019 Patient’s Perception of Non-Motor and Motor Function Successfully Models Parkinson’s Disease Severity PRWeb ... as rated by examiners, according to a new study released today at the International Congress of Parkinson’s Disease and Movement Disorders®. There is increased interest from clinical and regulatory bodies when it comes to patient reported data and its relationship to clinician administered measures of Parkinson’s disease (PD) severity. Understanding the specific self-reported non-motor and motor functional impairments that contribute to PD severity is important to treatment efforts ...
6/17/2019 Sailormen Inc. Popeyes Raised $680,000 during 15th Annual Golf Classic and Appetite for a Cure Campaign for Lifesaving Work of Muscular Dystrophy Association PR Newswire ... discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA's MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation's top ...
6/5/2019 AHRQ Awards Grant to U of Iowa to Research Health Data Exchange EHR Intelligence ... adopted throughout the U.S. health care system, and they are changing the way health care professionals deliver care and communicate with each other,” said Zhu. Dig Deeper AHRQ Challenge to Enable EHR Integration of Patient Reported Data “Today’s health care professionals often work as virtual care teams – a variety of practitioners providing care to the same patients, but working at different times and locations – all connected through the EHR,” he ...
5/14/2019 Muscular Dystrophy Association Awards 26 Grants Totaling More Than $7.5 Million for Neuromuscular Disease Research PR Newswire ... discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA's MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation's top ...
5/6/2019 Drink One for Dane: Dutch Bros and Customers Team Up With Muscular Dystrophy Association to Accelerate Research for Treatments and Cures for ALS PRWeb ... discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top ...