Patient Registry

Study protocol: effects, costs and distributional impact of digital primary care for infectious diseases–an observational, registry-based study in Sweden | BMJ | 8/20/2020

… Board of Health and Welfare provides data on prescribed and dispensed pharmaceuticals from a Swedish national drug registry and data on specialist visits in outpatient facilities and hospitals are collected from a national Swedish patient registry . Data on income, education, place of birth, residence, marital and labour market status are provided by Statistics Sweden’s databases. The principal investigator of the research project (BE) is responsible for handling the final data …

Return to work following diagnosis of low-grade glioma: A nationwide matched cohort study | 8/17/2020

… January 31, 2018. National Board of Health and Welfare The National Board of Health and Welfare (NBHW) is the government agency responsible for developing statistics about health care in different registries. From the National Patient Registry (NPR), we received data on days of inpatient and outpatient visits, including diagnostic and procedural codes in the 2003–2016 period. Since 2001, this registry has been subject to mandatory reporting from both private …

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Respiratory Mechanics During One-lung Ventilation: Ventilator-Induced Lung… | 8/17/2020

Intraoperative lung protective ventilatory strategy has been widely recognized to reduce postoperative pulmonary complications in laparotomy and laparoscopic surgeries. However, the clinical evidence and consensus for ventilatory strategy to protect the dependent lung segments during thoracic surgery that requires one-lung ventilation (OLV) is currently not available. Since lung compliance changes significantly during OLV, the levels of respiratory mechanics should be optimized to avoid barotrauma and volutrauma. This study aims …

Google Alert - software | 8/16/2020

… and New Technologies Research Forecast to 2024 The Daily Chronicle A proper understanding of the Hadoop Software Market dynamics and their inter-relations helps in gauging the performance of the industry. Flag as irrelevant Patient Registry Software Market In-depth Breakdown, Share, Key players, Geographical Regions … The Daily Chronicle In 2020, the global Patient Registry Software market was priced at US$ XX and is forecast at a CAGR of XX …

NEXSTIM PLC HALF-YEARLY REPORT 1 JANUARY – 30 JUNE 2020 (UNAUDITED) | Globe Newswire | 8/14/2020

… we believe it will increase the rollout of NBT ® Systems in key markets in the U.S. and the EU. There are also plans to continue to leverage our strong network of leading KOL’s and patient registry data. In April 2020 we reported the clinical outcomes of the first 55 patients who had completed NBT therapy for treatment of MDD at clinical sites in the U.S. About 40% of the patients …

Self-Registration: A person-centered approach to recording symptoms, observations, and outcomes. | 8/12/2020

… means my participation is necessarily that of an outsider. Other participants in the panel include Gina Assaf and Hannah Davis of Body Politic , and Emily Sirotich of the COVID-19 Global Rheumatology Alliance . A patient registry is a database that includes diagnosis and treatment details. As Susannah wrote in her introductory post, quoting the AHRQ definition of a registry : An organized system that uses observational study methods to collect uniform …

Malabsorption Syndrome Market Share, Applications, Sales, Cost and Profit Till 2023 | 8/10/2020

Malabsorption Syndrome Market Regional Analysis: The Americas dominate the malabsorption syndrome market share owing to the rising cases of causative diseases such as lactose intolerance, diarrhea, and cystic fibrosis, and high healthcare expenditure. According to the Cystic Fibrosis Foundation Patient Registry , more than 30,000 individuals are living with cystic fibrosis in the United States, and around 1,000 new cases of cystic fibrosis are diagnosed every year. Asia Pacific is the …

A machine-learning framework for robust and reliable prediction of short- and long-term treatment response in initially antipsychotic-naïve schizophrenia patients based on multimodal neuropsychiatric data | 8/10/2020

… categorical variable and defined using the criteria presented in Wimberley et al. 23 , which are based on data from the Danish National Prescription Registry, the Danish Psychiatric Central Research Register, and the Danish National Patient Registry . Accordingly, poor long-term responders fulfilled at least one of the following criteria from inclusion to December 12, 2016 based on data from the Danish National Health Service Prescription Database and the Danish Psychiatric …

Mortality in gastro-oesophageal reflux disease in a population-based nationwide cohort study of Swedish twins | BMJ | 8/7/2020

… 99% accurate in determining zygosity compared with DNA testing. 22 The Swedish Twin Registry is regularly updated with information from other nationwide Swedish registries, that is, the Cause of Death Registry, Cancer Registry and Patient Registry , which are briefly presented ahead. The Swedish Cause of Death Registry provided data on all-cause and cancer-specific mortality. This registry includes the date of death and causes of death for all Swedish …

MRI-Linac Consortium to Use RSSearch Patient Registry to Collect and Track MRI-Guided Radiotherapy Treatment Delivery and Outcomes | PRWeb | 8/7/2020

MRI-Linac Consortium to Use RSSearch Patient Registry to Collect and Track MRI-Guided Radiotherapy Treatment Delivery and Outcomes Share Article Unique Collaboration between the Consortium, ViewRay and the Radiosurgery Society aims to Advance the Science and Clinical Practice of MRI-Guided Adaptive Radiotherapy The RSSearch Registry continues to grow and is a valuable resource for multi-institutional observational studies and prospective clinical trials investigating stereotactic radiotherapy and advancing therapies …

The Radiosurgery Society Announces the MRI-Linac Consortium to Use RSSearch Patient Registry to Collect and Track MRI-Guided Radiotherapy Treatment Delivery and Outcomes | 8/7/2020

… of patients treated on MRIdian at various institutions across the globe. Through our contributions to the RSSearch Registry, we hope to demonstrate how MRIdian can achieve substantial clinical benefit for cancer patients.” The RSSearch Patient Registry is an observational multi-institutional registry established to standardize data collection from patients treated with stereotactic radiosurgery (SRS) and stereotactic body radiation therapy (SBRT). With data from more than 25,000 patient cases treated with …

Patient Registry Software Market worth $1,429.1 Million by 2022 | 8/7/2020

Posted on 2020-08-07 by MarketsandMarkets in Healthcare , Pharmaceuticals , Software , Technology // 0 Comments Pune, India , 2020-Aug-07 — /EPR Network/ — The report “ Patient Registry Software Market by Registry Type (Drugs, Diabetes, Cancer, Asthma, Orthopedic), Software (Integrated, Standalone), Delivery (On premise, Cloud), Functionality (PHM, HIE, POC), Database (Commercial, Public), End User – Global Forecast to 2022″ , The global patient registry software market is expected to reach USD 1,429.1 Million by 2022 from USD …

nirvana dispensary glendale for Dummies | 8/6/2020

… marijuana by individuals who have an oral or penned “Qualified view” from their physician that they “may well gain from the medical utilization of marijuana.” The regulation would not set up a condition-run patient registry .Though A few of these hazards can’t be mitigated, you’ll find stuff you can do to address—a minimum of partially—some of the previously mentioned, if you choose to smoke.Qualifying patients may possibly mature …

Patient Registry Software Market Size Worth $2.3 Billion By 2027 | Grand View Research, Inc. | The Wapakoneta Daily News | 8/5/2020

… cancer, diabetes, and cardiovascular diseases are fueling the demand for integrated registries for better treatment outcomes and new drug development. The growing adoption of electronic health records (EHR) is further boosting the market for patient registry software. The global patient registry software market size is expected to reach USD 2.3 billion by 2027 , expanding at a CAGR of 11.7%, according to a new report by Grand View Research, Inc. Increasing …

World Federation of Hemophilia (WFH) publishes “The WFH Guidelines for the Management of Hemophilia, 3rd edition” | PR Newswire | 8/4/2020

… bleeding disorders; and the need versus the availability of treatment products. WFH World Bleeding Disorders Registry ( WBDR ), which uses data collection to advance the understanding and care of people with hemophilia worldwide. An accessible patient registry strengthens our capacity to identify, diagnose, treat, and care for people living with hemophilia and other rare inherited bleeding disorders. The WFH Annual Global Survey which collects basic demographic information and data on access …

Considerations To Know About dumont dispensary near me | 8/4/2020

Considerations To Know About dumont dispensary near me Considerations To Know About dumont dispensary near me Category: Blog On Friday, June 26 2019, the Missouri medical marijuana patient registry will open. But how soon must clients count on in order to acquire medical cannabis? The state recently released a map of wherever Missouri dispensaries may very well be Found.People thinking about Finding out more details on the sensible application of …

ASDHA July Message to the Military Health System Team | 8/2/2020

… Department of Health and Human Services and the Food and Drug Administration. For instance, the Defense Health Agency, the military services, and the Uniformed Services University’s work on the Department’s first-ever COVID-19 patient registry is informing our medical research, clinical practice guidelines, and contributions to peer- reviewed journals, and are also being adopted as part of other policy and guidance products throughout the interagency. You can read more …

interesting study | 7/31/2020

… QC criteria Last verified Listed location countries Location terms Masking NCT number No intervention arm Observational study Observational study model Other adverse event Other study IDs Other terms Outcome measure Parallel assignment Participant flow Patient registry Phase Phase 1 Phase 2 Phase 3 Phase 4 Phase Not Applicable Placebo Placebo comparator arm Primary completion date Primary outcome measure Primary purpose Principal investigator (PI) Protocol Quality control (QC) review Randomized allocation …

Patient Registry Software Market is Expected to Expand Its Revenue Generation at a CAGR of 10.5% Between 2015 and 2023 | 7/31/2020

The global market for patient registry software is likely to get intense with the coming few years, owing to the existence of several players, states a new market research study by Transparency Market Research. The high level of fragmentation and the rising level of competition are estimated to generate potential growth opportunities for the players over the next few years. Read Report Overview – https://www.transparencymarketresearch.com/patient-registry-software-market.html The …

Clinical Situation, Therapy, and Follow-Up of Adult Craniopharyngioma. | National Institutes of Health | 7/29/2020

… of frequent research whereas the information on adult-onset craniopharyngioma is scarce. Objective: The objective of this study was to examine the level of daily impairment in adult patients suffering from craniopharyngioma. Design: Noninterventional patient registry indexed as PV4842 with the local ethics committee. Setting: The study is set in a hospitalized and ambulatory setting. Patients: 148 patients with adult-onset craniopharyngioma were recruited from 8 centers, 22 prospectively and …

Journal Watch: A Scale for Dyspnea | 7/29/2020

… level is comparable to EMTs in the USA. Denmark was a great place to complete this study because all citizens have a “personal civil registration number.” All healthcare contacts are registered in Denmark’s National Patient Registry using this number. While the patient registry contains information about diagnosis, treatments, and procedures, it does not include mortality data. However, in Denmark data collection systems and registries are all linkable by the personal …

Visiongain Publishes Patient Registry Software Market Report 2020-2030 | 7/29/2020

Patient Registry Software Market Report 2020-2030 : Forecasts by Registry Type (Drugs, Diabetes, Cancer, Asthma, Orthopaedic), Software (Integrated, Standalone), Delivery (On-premise, Cloud), Functionality (Population Health Management, Patient Care Management, Health Information Exchange, Point-of-Care, Product Outcome Evaluation, Medical Research and Clinical Studies), Database (Commercial, Public), End-user (Government Organizations & Third-Party Administrators (TPAs), Hospitals and Medical Practices, Private Payers, Pharmaceutical & Biotechnology and Medical Device Companies, and Research Centers) Latin …

Patient Registry Software Market: Technological Growth Map over Time | 7/27/2020

The Insight Partners analysts forecasts the latest report on “Global Patient Registry Software Market - Impact and Analysis by 2027 (with Covid-19 Impact Analysis)”, according to report; The Patient Registry Software Market report covers the overall and all-inclusive analysis of Market with all its factors that have an impact on market growth. This report is anchored on the thorough qualitative and quantitative assessment of the Patient Registry Software Market …

Patient Registry Software Market Set for Rapid Growth and Trend by 2022 | 7/27/2020

Home Healthcare Patient Registry Software Market Set for Rapid Growth and Trend by 2022 Patient Registry Software Market Set for Rapid Growth and Trend by 2022 Jul 27th, 2020 · 0 Comment The growth of the market is attributed to the growing implementation of government initiatives to build patient registries, rising pressure to improve the quality of care and reduce healthcare costs, rising adoption of EHRs, and growing use of patient …

Cystic Fibrosis Foundation Awards Grants to Four Community Organizations Dedicated to Empowering People With CF | Business Wire | 7/27/2020

… connecting people with CF, including online dance classes, job training workshops, and a storytelling podcast. Another program is focused on supporting and fostering connection across the Black CF community. According to the CF Foundation Patient Registry , approximately five percent of people with CF identify as Black, and are more likely to have rare mutations that cannot be treated with current modulators, making additional support for the Black CF community an …

Radiotherapy

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | PRWeb | 4/29/2020

… Business Relations. Through the RSS Sponsorship Alliance these members receive opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities … http://www.therss.org ) represents approximately 600 members who perform stereotactic body radiotherapy and radiosurgery in hospitals and freestanding centers throughout the world. Share article on social media or email: View article via …

Clinical Research

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | PRWeb | 4/29/2020

Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution, such as live and recorded webinars, clinical/advisory committees, RSS Residents Program and mentoring opportunities. “Perlmutter Cancer Center at NYU Langone Health was an early adopter of SBRT, recognizing the important role it could play in improving patient care and helping to pave the way …

Medical Research

Feinstein Institutes to Collect COVID-19 Patient Plasma, Research Antibodies Therapy | Business Wire | 4/10/2020

… Apr 10, 2020– To investigate new experimental treatments to aid in the fight against COVID-19, The Feinstein Institutes for Medical Research , the research arm of Northwell Health, announced today it has formally joined a … can register their names at the Feinstein Institutes’ Convalescent Coronavirus Patient Registry . Participants will then be referred for plasma collection at a New York Blood Center site. Donors will also be given the opportunity to …

HIPAA

10 things to know about data sharing, HIPAA during the coronavirus | Becker’s Hospital Review | 4/10/2020

… to a new level for coordinated care. The response promotes interoperability and the federal government has relaxed information sharing and HIPAA regulations to ensure efficient and effective care. Tech giants including Google, Amazon, Facebook and … data registry. 7. HCA, Google Cloud are creating a national patient registry. HCA Healthcare, 185-hospital health system, has reached out to hospital groups representing 4,000 hospitals to join its efforts with Google Cloud to …

Food and Drug Administration

Feinstein Institutes to Collect COVID-19 Patient Plasma, Research Antibodies Therapy | Business Wire | 4/10/2020

Food and Drug Administration has outlined enrollment criteria. To be considered to participate, a person must have tested positive for COVID-19 as documented by a laboratory test and currently be symptom free. If interested in donating, patients can register their names at the Feinstein Institutes’ Convalescent Coronavirus Patient Registry . Participants will then be referred for plasma collection at a New York Blood Center site. Donors will also be given …

COVID-19

10 things to know about data sharing, HIPAA during the coronavirus | Becker’s Hospital Review | 4/10/2020

The COVID-19 pandemic has required healthcare organizations as well as federal agencies to take data gathering and reporting to a new level for coordinated care. The response promotes interoperability and the federal government has … data registry. 7. HCA, Google Cloud are creating a national patient registry. HCA Healthcare, 185-hospital health system, has reached out to hospital groups representing 4,000 hospitals to join its efforts with Google Cloud to …

EMR

Meticulous Research®’s Healthcare IT Market Report Mentions, Practice Management System Market to Reach $618.3 Million by 2027 | Globe Newswire | 4/2/2020

… billing statements and generating electronic claims based on the patient information. According to a report, “ Healthcare IT Market by Product (EMR, mHealth, PHM, RIS, PACS, RCM, Healthcare Analytics, Telehealth, SCM, HIE), Component (Software, Service), Delivery … Precision Medicine), End User, And Geography - Global Forecast To 2025 Patient Registry Software Market By Type (Diabetes, Cancer, Rare Diseases, CVD, Orthopedic, Drugs, Device), Delivery (On Premise, Cloud), Functionality (PHM, HIE, POC, Research), Database (Public …

Medicaid

CMS Relaxes Quality Reporting for Value-Based Purchasing Models | RevCycle Intelligence | 3/24/2020

… the MIPS, MSSP, and other key value-based purchasing programs for hospitals and post-acute care. Source: Centers for Medicare & Medicaid By March 24, 2020 - Providers participating in some of Medicare’s largest value-based purchasing … for eligible hospitals and critical access hospitals CrownWeb National ESRD Patient Registry and Quality Measure Reporting System End-Stage Renal Disease (ESRD) Quality Incentive Program The flexibility will also be granted for Medicare Quality Reporting …

ACO

CMS Relaxes Quality Reporting for Value-Based Purchasing Models | RevCycle Intelligence | 3/24/2020

… According to the announcement, the same quality reporting and incentive payment flexibility will apply to Medicare’s flagship accountable care organization (ACO) initiative: the Medicare Shared Savings Program (MSSP). Additionally, CMS granted quality reporting flexibility for … for eligible hospitals and critical access hospitals CrownWeb National ESRD Patient Registry and Quality Measure Reporting System End-Stage Renal Disease (ESRD) Quality Incentive Program The flexibility will also be granted for Medicare Quality Reporting …

Medicare

CMS Relaxes Quality Reporting for Value-Based Purchasing Models | RevCycle Intelligence | 3/24/2020

… for the MIPS, MSSP, and other key value-based purchasing programs for hospitals and post-acute care. Source: Centers for Medicare & Medicaid By March 24, 2020 - Providers participating in some of Medicare’s largest value-based … for eligible hospitals and critical access hospitals CrownWeb National ESRD Patient Registry and Quality Measure Reporting System End-Stage Renal Disease (ESRD) Quality Incentive Program The flexibility will also be granted for Medicare Quality Reporting …

Mental Health

Notice of Special Interest (NOSI): NIH Research Project Grants on Down Syndrome (R01) for the INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project | National Institutes of Health | 12/18/2019

… National Institute on Deafness and Other Communication Disorders ( NIDCD ) National Institute of Dental and Craniofacial Research ( NIDCR ) National Institute of Environmental Health Sciences ( NIEHS ) National Institute of Mental Health ( NIMH ) National Institute of Neurological Disorders … to promote enrollment of research subjects in the Down syndrome patient registry supported by NIH, DS-Connect ®. For other data and biospecimens from human genetic or non-genetic studies, awardees are encouraged to use biorepositories …

Clinical Pharmacology

KUVAN (sapropterin dihydrochloride) tablet KUVAN (sapropterin dihydrochloride) powder, for solution KUVAN (sapropterin dihydrochloride) powder, for solution [BioMarin Pharmaceutical Inc.] | National Institutes of Health | 12/9/2019

8.1 Pregnancy Pregnancy Category C A patient registry has been established that collects data on women who are treated with Kuvan during pregnancy. For more information regarding the registry program call 1-800-983-4587. Risk Summary There … dose-dependent shortening of the QT interval was observed [see Clinical Pharmacology ( 12.2 )]. Patients should be advised to notify their physicians in cases of overdose. 11 DESCRIPTION Kuvan (sapropterin dihydrochloride) is an orally administered Phenylalanine …

Patient Empowerment

MyLymeData: My Data, My Trust | 11/22/2019

by lmartin November 21, 2019 Comments are off Like LymeDisease.org was founded over 25 years ago as a non-profit grass-roots organization grounded in the principles of patient empowerment, participation, and self-determination. Our patient registry project, MyLymeData is part of this grass roots effort to amplify patients’ collective voices in patient-led research. MyLymeData is patient-led research The registry was created by patients, is run by patients …

Rare Disease Research

Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive | PR Newswire | 11/19/2019

… record, today announced that it has launched a research study together with Project Alive to further medical research and understanding of Hunter syndrome. Using patient-reported data from Backpack Health’s Hunter Syndrome International Patient Registry , Project Alive will examine potential associations between approved and experimental therapies and toileting skills among patients with neurocognitive and attenuated forms of Hunter syndrome. “Our focus on patient empowerment recognizes that patients and caregivers often …

Electronic Health Records

Amgen And The Duke Clinical Research Institute Announce Initiation Of First Large-Scale Registry To Evaluate Real-World Lipid Management And The Effectiveness Of PCSK9 Inhibitors | PR Newswire | 11/15/2019

THOUSAND OAKS, Calif. , Nov. 15, 2019 /PRNewswire/ – Amgen (NASDAQ: AMGN ) in collaboration with the Duke Clinical Research Institute (DCRI) today announced plans to initiate the C ardio v ascular M ulti-dimensional Ob servational I nvestigation of the U se of PC S K9 inhibitors (cvMOBIUS) study—the first large-scale real-world study to assess lipid management and the impact of PCSK9 inhibitors on cardiovascular (CV) outcomes in clinical …

Real World Evidence

Amgen And The Duke Clinical Research Institute Announce Initiation Of First Large-Scale Registry To Evaluate Real-World Lipid Management And The Effectiveness Of PCSK9 Inhibitors | PR Newswire | 11/15/2019

THOUSAND OAKS, Calif. , Nov. 15, 2019 /PRNewswire/ – Amgen (NASDAQ: AMGN ) in collaboration with the Duke Clinical Research Institute (DCRI) today announced plans to initiate the C ardio v ascular M ulti-dimensional Ob servational I nvestigation of the U se of PC S K9 inhibitors (cvMOBIUS) study—the first large-scale real-world study to assess lipid management and the impact of PCSK9 inhibitors on cardiovascular (CV) outcomes in clinical …

Population Health

T1D Exchange Names David Walton as CEO | Business Wire | 11/7/2019

… continues to grow, recently welcoming Osagie Ebekozien MD, MPH, CPHQ, CPHRM, to T1D Exchange as Vice President, Quality Improvement and Population Health, and naming Rebecca Parkes as Chief Operating Officer. “The pace of innovation and … supports quality improvement and innovation through its Quality Improvement Collaborative, patient registry, data-oriented research services and biennial Diabetes Innovation Challenge. It plays an active role in creating real-world impact with this integrated data …

Health Management

T1D Exchange Names David Walton as CEO | Business Wire | 11/7/2019

… patient registry, data-oriented research services and biennial Diabetes Innovation Challenge. It plays an active role in creating real-world impact with this integrated data by providing clinicians, researchers, industry partners and advocates with the resources and services they need for better decision support and population health management. View source version on businesswire.com : https://www.businesswire.com/news/home/20191107005286/en/ CONTACT: For T1D Exchange …

Digital Health

T1D Exchange Names David Walton as CEO | Business Wire | 11/7/2019

… more than half of that time spent in diabetes in commercial leadership positions at several glucose monitoring, insulin delivery and digital health companies where he helped launch 10 innovative medtech products. Most recently, Mr. Walton … supports quality improvement and innovation through its Quality Improvement Collaborative, patient registry, data-oriented research services and biennial Diabetes Innovation Challenge. It plays an active role in creating real-world impact with this integrated data …

National Institutes of Health

$22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis | HealthIT Analytics | 11/5/2019

… precision medicine research for pulmonary fibrosis, advancing treatment and diagnosis of the disease. Source: Thinkstock By November 05, 2019 - The National Institutes of Health and Three Lakes Partners, a philanthropic family organization, has awarded the … co-principal investigator. The PRECISIONS team will leverage the PFF Patient Registry and Biorepository, which has enrolled more than 2,000 patients with a diverse range of PF disorders at 42 Care Center Network sites nationwide …

NIH

$22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis | HealthIT Analytics | 11/5/2019

Precision Medicine News $22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis The grant will support precision medicine research for pulmonary fibrosis, advancing treatment and diagnosis of the disease. Source: Thinkstock By November 05, 2019 … co-principal investigator. The PRECISIONS team will leverage the PFF Patient Registry and Biorepository, which has enrolled more than 2,000 patients with a diverse range of PF disorders at 42 Care Center Network sites nationwide …

Precision Medicine

$22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis | HealthIT Analytics | 11/5/2019

Precision Medicine News $22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis The grant will support precision medicine research for pulmonary fibrosis, advancing treatment and diagnosis of the disease. Source: Thinkstock By November 05, 2019 … co-principal investigator. The PRECISIONS team will leverage the PFF Patient Registry and Biorepository, which has enrolled more than 2,000 patients with a diverse range of PF disorders at 42 Care Center Network sites nationwide …

Clinical Data

(USA-CA-San Diego) Lead Clinical Data Analyst | 11/2/2019

NuVasive, Inc. Lead Clinical Data Analyst in San Diego , California Lead Clinical Data Analyst US, US, CA - San Diego Minimum Level of Education Required:Bachelors Degree Percentage of Travel:Up to 10% Location:CA - San … regulatory compliance of the Microsoft SQL Server environment. Liaise with patient registry and study teams to identify and implement reporting and automation opportunities to optimize data access for end-users. Identify data issues and recommend …

Clinical Data Management

CB2 Insights Announces Record Preliminary Unaudited Q3 2019 Revenue of $4.2 Million and Details for Earnings Call Canadian Stock Exchange:CBII.CN | Globe Newswire | 11/1/2019

… Insights now owns and operates one of the the largest networks of medical cannabis clinics in the U.S with a patient registry of 100,000 unique patients annually Earnings results are set to be released with … The Company has built both electronic data capture (EDC) and clinical data management software (CDMS) which work to support its partners of any size to execute their data and clinical strategies. CB2 also offers comprehensive …

Clinical Operations

CB2 Insights Announces Record Preliminary Unaudited Q3 2019 Revenue of $4.2 Million and Details for Earnings Call Canadian Stock Exchange:CBII.CN | Globe Newswire | 11/1/2019

… Insights now owns and operates one of the the largest networks of medical cannabis clinics in the U.S with a patient registry of 100,000 unique patients annually Earnings results are set to be released with … capabilities to generate new revenue streams to our already profitable clinical operations in the U.S.,” said Prad Sekar, CEO of CB2 Insights. “We believe we have now arrived at an inflection point in our business …

Novo Nordisk

All-cause mortality risk nearly halved with insulin degludec vs. glargine | 12/2/2019

… Patient Registry, the National Pharmacological Database of the Danish Medicines Agency and the Danish Register of Causes of Death to identify adults with diabetes in Denmark prescribed insulin and the outcomes, such as major adverse cardiovascular events, severe hypoglycemia and all-cause mortality, from 2016 to 2017 in these patients. The researchers identified insulin degludec (Tresiba, Novo Nordisk) use among 5,159 adults (mean age, 66 years; 39.6% women) and insulin …

Celgene

Dallas/Fort Worth To Demand Better For Patients, Survival At PurpleStride, The Walk To End Pancreatic Cancer | PR Newswire | 11/1/2019

… support critical research, clinical initiatives and patient services, including Know Your Tumor ® , Precision Promise SM , Clinical Trial Finder and the Patient Registry . Katy Palasek , chair of the PanCAN DFW Affiliate, lost both her mother and … Ginger Allen . The event is supported by national presenting sponsor Celgene , presenting sponsor Bell Nunnally , national gold sponsors AbbVie and Ipsen , gold sponsors Ed Haggar Family Foundation , UT Southwestern Simmons Cancer Center and Methodist Digestive …

AbbVie

Dallas/Fort Worth To Demand Better For Patients, Survival At PurpleStride, The Walk To End Pancreatic Cancer | PR Newswire | 11/1/2019

… support critical research, clinical initiatives and patient services, including Know Your Tumor ® , Precision Promise SM , Clinical Trial Finder and the Patient Registry . Katy Palasek , chair of the PanCAN DFW Affiliate, lost both her mother and … presenting sponsor Celgene , presenting sponsor Bell Nunnally , national gold sponsors AbbVie and Ipsen , gold sponsors Ed Haggar Family Foundation , UT Southwestern Simmons Cancer Center and Methodist Digestive Institute , gold media sponsors CBS11/TXA21 and iHeart …

Optum

Occurrence, thromboembolic risk, and mortality in Danish patients with cold agglutinin disease | Blood Advances | American Society of Hematology | 10/16/2019

… year case fatality rate of up to 20%. A recent retrospective study using a large US clinical claims data set (Optum) showed a correlation between CAD and thromboembolic events (TEs). 12 To date, there have … disease and mortality ascertainment. 13 Data in the Danish National Patient Registry (DNPR), which covers all Danish hospitals, provide population-based information to evaluate disease occurrence, burden, and clinical course in CAD patients. 13 , 14 …

Bristol-Myers Squibb

MMRF Research Programs Drives New Breakthroughs in Multiple Myeloma Research | Business Wire | 9/13/2019

… for future therapies. MMRF CureCloud MMRF Chief Scientific Officer Daniel Auclair, PhD is presenting the first poster on the CureCloud patient registry. This direct-to-patient registry allows patients to contribute their data to a … of patient donors and industry partners, including Takeda Oncology, Amgen, Bristol-Myers Squibb, Janssen Pharmaceuticals, Inc. and Janssen Diagnostics. Please visit www.themmrf.org/research-partners/the-commpass-study to learn more. About Multiple Myeloma Multiple myeloma …

Predictive Oncology

Predictive Oncology Inc. Reports Second Quarter 2019 Financial Results and Provides Corporate Update | Globe Newswire | 8/21/2019

… Host Conference Call to Review Financial Results and Provide Corporate Update at 5:30PM Today August 19, 2019 17:15 ET Source: Predictive Oncology Inc. MINNEAPOLIS, Aug. 19, Predictive Oncology Inc., (NASDAQ: POAI) (“Predictive Oncology ” or “the … Areata Foundation signed a services agreement to provide next-generation patient registry for Alopecia Areata Research. TumorGenesis and partner 48Hour Discovery received Alberta Innovates grant for development of novel cancer treatments. Helomics contracted to provide …

McKesson

Global Patient Registry Software Market 2019 Top Players are IBM, McKesson Corporation, Research Holdings, IMS Health, Liaison Technologies, ifa systems AG, UnitedHealth Group, Premier Inc., EVADO, Invitae, FIGmd, Inc., Global Vision Technologies | 7/19/2019

… This report also shows the production, consumption, revenue, gross margin, cost, gross, market share, CAGR and market factors influencing the Patient Registry Software market at global level in 2017-2024. The Patient Registry Software report analyzes … major players operating in patient registry software market are IBM, McKesson Corporation, Inc Research Holdings, QuintilesIMS, Liaison Technologies, ifa systems AG, UnitedHealth Group, Premier, Inc.,Evado, Invitae Corporation, FIGmd, Global Vision Technologies, Inc., Dacima Software …

Liaison Technologies

Global Patient Registry Software Market 2019 Top Players are IBM, McKesson Corporation, Research Holdings, IMS Health, Liaison Technologies, ifa systems AG, UnitedHealth Group, Premier Inc., EVADO, Invitae, FIGmd, Inc., Global Vision Technologies | 7/19/2019

… This report also shows the production, consumption, revenue, gross margin, cost, gross, market share, CAGR and market factors influencing the Patient Registry Software market at global level in 2017-2024. The Patient Registry Software report analyzes … software market are IBM, McKesson Corporation, Inc Research Holdings, QuintilesIMS, Liaison Technologies, ifa systems AG, UnitedHealth Group, Premier, Inc.,Evado, Invitae Corporation, FIGmd, Global Vision Technologies, Inc., Dacima Software Inc., HealthDiary Inc., Velos Inc., Medstreaming …

GlaxoSmithKline

Immunocore and Pulse Infoframe, Inc. Partner with Leading Academic Institutions to Launch First Global Patient Registry for Uveal Melanoma | Business & Finance | heraldchronicle.com | Business Wire | 7/18/2019

Spring Has Sprung Photo AP Immunocore and Pulse Infoframe, Inc. Partner with Leading Academic Institutions to Launch First Global Patient Registry for Uveal Melanoma Jul 18, 2019 Save OXFORD, England & CONSHOHOCKEN, Pa. & ROCKVILLE, Md. & ONTARIO … proprietary and partnered programmes in development. Collaboration partners include Genentech, GlaxoSmithKline, AstraZeneca, Lilly, and the Bill and Melinda Gates Foundation. Immunocore is headquartered at Milton Park, Oxfordshire, UK, with offices in Conshohocken, PA and Rockville …

Phytel

Global Patient Registry Software Market: Phytel, Inc. (US), QUINTILES IMS HOLDINGS, INC. (US), Liaison Technologies. (US), ImageTrend, Inc. (US), FIGmd, Inc. (US) | 6/7/2019

Global Patient Registry Software Market: Phytel, Inc. (US), QUINTILES IMS HOLDINGS, INC. (US), Liaison Technologies. (US), ImageTrend, Inc. (US), FIGmd, Inc. (US) 47 mins ago alton Patient Registry Software Market The worldwide Patient Registry Software market is one of the most segmented and developing markets. This Patient Registry Software market has been growing at a considerable speed with an increasing consumer preference and the development of new methods. The Patient …

McKesson Corporation

Global Patient Registry Software Market: Phytel, Inc. (US), QUINTILES IMS HOLDINGS, INC. (US), Liaison Technologies. (US), ImageTrend, Inc. (US), FIGmd, Inc. (US) | 6/7/2019

Global Patient Registry Software Market: Phytel, Inc. (US), QUINTILES IMS HOLDINGS, INC. (US), Liaison Technologies. (US), ImageTrend, Inc. (US), FIGmd, Inc. (US) 47 mins ago alton Patient Registry Software Market The worldwide Patient Registry Software … US), Liaison Technologies. (US), ImageTrend, Inc. (US), FIGmd, Inc. (US), McKesson Corporation (US), CECity.com Inc. (a Premier, Inc. Company) (US), Dacima Software Inc. (US), Global Vision Technologies, In). Click Here To Access The [email protected] www.futuremarketresearch.com …

Gilead

Gilead takes aim at diabetic kidney disease with $109M Goldfinch deal | FierceBiotech | 5/8/2019

Gilead is turning its sights to diabetic kidney disease (DKD). In a $109 million deal , Gilead and Goldfinch Bio will use the latter’s Kidney Genome Atlas to identify and validate targets for DKD and “certain orphan kidney diseases.” Based in Cambridge, Massachusetts, Goldfinch Bio aims to use a precision medicine approach to better treat kidney disease. Its pipeline is based on its Kidney Genome Atlas, a patient registry containing genomic …

SPH Analytics

SPH Analytics’ Nexus Platform and Population Care Achieve NCQA PHM Prevalidation | PRWeb | 4/10/2019

SPH Analytics’ Nexus Platform and Population Care Achieve NCQA PHM Prevalidation Share Article Designation Helps Health Plans Meet Population Health Management Requirements for Accreditation By ingesting and normalizing massive amounts of data from disparate clinical … health management, announced that its Nexus Platform™ and Population Care™ Patient Registry solution (formerly MDinsight) have achieved National Committee for Quality Assurance (NCQA) Prevalidation for Population Health Management (PHM) for 2019 standards. As only one …

Bristol-Myers

Goldfinch Bio Appoints Anthony Johnson, M.D., President and Chief Executive Officer, and Michael Broxson, Chief Business and Operating Officer | PR Newswire | 12/5/2017

… Biotech Unit. Prior to AstraZeneca, he was a venture partner at OrbiMed Advisors and held R&D leadership roles at Bristol-Myers Squibb (BMS) and GlaxoSmithKline. Altogether, Tony has been responsible for advancing more than … an innovative portfolio of therapeutic programs and building out the patient registry and product engine,” said Mr. Broxson. “This is an exciting time for all the stakeholders in the nephrology community and we look forward …

Medstreaming

Patient Registry Software Market 2017 - Industry Size, Share, Dynamics, Status, Outlook and Opportunies: 2022 | 10/30/2017

Orbis Research - Monday, October 30, 2017. Orbis Research: Statistical Analysis for “Patient Registry Software Market” capacity, production, production value, cost/profit, supply/demand and import/export. The report will assist reader with better understanding and … Technologies, Inc. (GVT), ifa systems AG, INC RESEARCH HOLDINGS, INC., Medstreaming, McKesson Corporation, QUINTILES IMS HOLDINGS, INC., Optum, Inc., EVADO Pty. Ltd., Velos, Inc.. Browse the full report @ http://www.orbisresearch.com/reports/index/global-patient-registry …

Corista

Digital Pathology Market 12.3% CAGR to 2022 led by North America | PR Newswire | 10/25/2017

… US), and Hamamatsu Photonics ( Japan ). Other players include 3DHISTECH ( Hungary ), Philips ( Netherlands ), Apollo Enterprise Imaging (US), XIFIN (US), Visiopharm ( Denmark ), Corista (US), Huron Digital Pathology ( Canada ), Objective Pathology Services ( Canada ), and Indica Labs (US). Make … Europe : 29%, Asia-Pacific : 20%, RoW: 6% Another research titled Patient Registry Software Market Global Forecast to 2022 says, the global patient registry software market is expected to reach $1,429.1 million by 2022 from $807.4 …

XIFIN

Digital Pathology Market 12.3% CAGR to 2022 led by North America | PR Newswire | 10/25/2017

… Germany ), Ventana Medical Systems (US), and Hamamatsu Photonics ( Japan ). Other players include 3DHISTECH ( Hungary ), Philips ( Netherlands ), Apollo Enterprise Imaging (US), XIFIN (US), Visiopharm ( Denmark ), Corista (US), Huron Digital Pathology ( Canada ), Objective Pathology Services ( Canada ), and … Europe : 29%, Asia-Pacific : 20%, RoW: 6% Another research titled Patient Registry Software Market Global Forecast to 2022 says, the global patient registry software market is expected to reach $1,429.1 million by 2022 from $807.4 …

Leica Biosystems

Digital Pathology Market 12.3% CAGR to 2022 led by North America | PR Newswire | 10/25/2017

… the growth of the digital pathology market in this region. The major players in the global digital pathology market are Leica Biosystems ( Germany ), Ventana Medical Systems (US), and Hamamatsu Photonics ( Japan ). Other players include 3DHISTECH … Europe : 29%, Asia-Pacific : 20%, RoW: 6% Another research titled Patient Registry Software Market Global Forecast to 2022 says, the global patient registry software market is expected to reach $1,429.1 million by 2022 from $807.4 …

International Finance Corporation

Peter Cashion Joins The Pancreatic Cancer Action Network Board Of Directors | PR Newswire | 12/12/2017

… his new leadership role in the fight against the world’s toughest cancer, Cashion brings over 20 years’ experience with the International Finance Corporation as a chief investment officer and equity head. From the loss of … initiatives, including Precision Promise SM , Know Your Tumor ® and the Patient Registry . Support the Pancreatic Cancer Action Network’s urgent goal to double survival by 2020 . Follow the Pancreatic Cancer Action Network on Twitter , Instagram and …

Peter Cashion Joins The Pancreatic Cancer Action Network Board Of Directors | PR Newswire | 12/12/2017

… his new leadership role in the fight against the world’s toughest cancer, Cashion brings over 20 years’ experience with the International Finance Corporation as a chief investment officer and equity head. From the loss of … initiatives, including Precision Promise SM , Know Your Tumor ® and the Patient Registry . Support the Pancreatic Cancer Action Network’s urgent goal to double survival by 2020 . Follow the Pancreatic Cancer Action Network on Twitter , Instagram and …

Third Rock Ventures

Goldfinch Bio Appoints Anthony Johnson, M.D., President and Chief Executive Officer, and Michael Broxson, Chief Business and Operating Officer | PR Newswire | 12/5/2017

patient registry and product engine,” said Mr. Broxson. “This is an exciting time for all the stakeholders in the nephrology community and we look forward to further collaboration as we advance new treatments for patients with kidney disease.” Dr. Johnson and Mr. Broxson succeed interim chief executive officer Abbie Celniker , Ph.D., and interim chief operating officer Neil Exter , both partners at Third Rock Ventures, who will remain on Goldfinch Bio’s …

Goldfinch Bio Appoints Anthony Johnson, M.D., President and Chief Executive Officer, and Michael | PR Newswire | 12/5/2017

patient registry and product engine,” said Mr. Broxson. “This is an exciting time for all the stakeholders in the nephrology community and we look forward to further collaboration as we advance new treatments for patients with kidney disease.” Dr. Johnson and Mr. Broxson succeed interim chief executive officer Abbie Celniker , Ph.D., and interim chief operating officer Neil Exter , both partners at Third Rock Ventures, who will remain on Goldfinch Bio’s …

OrbiMed Advisors

Goldfinch Bio Appoints Anthony Johnson, M.D., President and Chief Executive Officer, and Michael Broxson, Chief Business and Operating Officer | PR Newswire | 12/5/2017

… clinical development for the Innovative Medicines and Early Development Biotech Unit. Prior to AstraZeneca, he was a venture partner at OrbiMed Advisors and held R&D leadership roles at Bristol-Myers Squibb (BMS) and GlaxoSmithKline … an innovative portfolio of therapeutic programs and building out the patient registry and product engine,” said Mr. Broxson. “This is an exciting time for all the stakeholders in the nephrology community and we look forward …

Goldfinch Bio Appoints Anthony Johnson, M.D., President and Chief Executive Officer, and Michael | PR Newswire | 12/5/2017

… clinical development for the Innovative Medicines and Early Development Biotech Unit. Prior to AstraZeneca, he was a venture partner at OrbiMed Advisors and held R&D leadership roles at Bristol-Myers Squibb (BMS) and GlaxoSmithKline … an innovative portfolio of therapeutic programs and building out the patient registry and product engine,” said Mr. Broxson. “This is an exciting time for all the stakeholders in the nephrology community and we look forward …

NYU Langone Health

Humanetics Corporation Receives Funding from NIAID to Test Drug in COVID-19 Patients | Business Wire | 7/23/2020

… NYU Langone Health, which has treated over 10,000 COVID-19 patients. Rany Condos, MD, who is leading efforts at NYU Langone to set up a post COVID-19 recovery clinic and patient registry, will lead the BIO 300 study. NYU Langone plans to follow patients long-term to better understand the effects of recovering from COVID-19. “We don’t fully understand the long-term effects of COVID-19 and are …

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | PRWeb | 4/29/2020

Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution, such as live and recorded webinars, clinical/advisory committees, RSS Residents Program and mentoring opportunities. “Perlmutter Cancer Center at NYU Langone Health was an early adopter of SBRT, recognizing the important role it could play in improving patient care and helping to pave the way …

Geisinger

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | PRWeb | 4/29/2020

… Business Relations. Through the RSS Sponsorship Alliance these members receive opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities … said Daniel Rawluk, M.D. Current Academic/Medical Center sponsors include Geisinger, Henry Ford Health System, Hematology-Oncology Associates of CNY, Montefiore Albert Einstein College of Medicine, Stanford Health Care, UAB Medicine, UPMC Hillman Cancer Center …

RSSearch® Patient Registry Surpasses 25,000 Patient Cases Using Stereotactic Body Radiotherapy/Stereotactic Radiosurgery | PRWeb | 9/13/2019

RSSearch® Patient Registry Surpasses 25,000 Patient Cases Using Stereotactic Body Radiotherapy/Stereotactic Radiosurgery Share Article The RSSearch Registry – led by the Radiosurgery Society – is the largest and most robust live database of its kind in … stated Anand Mahadevan, MD, Professor and Chairman, Radiation Oncology at Geisinger Health, Geisinger Cancer Institute, Danville, PA. The RSSearch Patient Registry is an observational registry established to standardize data collection from patients treated with SRS …

UPMC

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | PRWeb | 4/29/2020

… Business Relations. Through the RSS Sponsorship Alliance these members receive opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities … Albert Einstein College of Medicine, Stanford Health Care, UAB Medicine, UPMC Hillman Cancer Center and UW Medicine. As a member of the RSS Sponsorship Alliance, corporations and device manufacturers in addition to receiving world-wide …

Predictive Oncology Inc. Reports Second Quarter 2019 Financial Results and Provides Corporate Update | Globe Newswire | 8/21/2019

… of these four STREAMWAY units in India marks our entry into that country. Helomics announced a joint collaborative agreement with UPMC to study the use of artificial intelligence to improve clinical decision making for ovarian … Areata Foundation signed a services agreement to provide next-generation patient registry for Alopecia Areata Research. TumorGenesis and partner 48Hour Discovery received Alberta Innovates grant for development of novel cancer treatments. Helomics contracted to provide …

MD Anderson Cancer Center

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | 4/29/2020

… to advancing the science and clinical practice of radiosurgery, today announced that NYU Langone Hospitals and The University of Texas MD Anderson Cancer Center have joined the organization’s growing membership in its RSS Sponsorship Alliance … opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution …

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | 4/29/2020

… to advancing the science and clinical practice of radiosurgery, today announced that NYU Langone Hospitals and The University of Texas MD Anderson Cancer Center have joined the organization’s growing membership in its RSS Sponsorship Alliance … opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution …

Perlmutter Cancer Center

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | 4/29/2020

Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution, such as live and recorded webinars, clinical/advisory committees, RSS Residents Program and mentoring opportunities. “Perlmutter Cancer Center at NYU Langone Health was an early adopter of SBRT, recognizing the important role it could play in improving patient care and helping to pave the way …

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | 4/29/2020

Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution, such as live and recorded webinars, clinical/advisory committees, RSS Residents Program and mentoring opportunities. “Perlmutter Cancer Center at NYU Langone Health was an early adopter of SBRT, recognizing the important role it could play in improving patient care and helping to pave the way …

University of Texas MD Anderson Cancer Center

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | 4/29/2020

… medical society dedicated to advancing the science and clinical practice of radiosurgery, today announced that NYU Langone Hospitals and The University of Texas MD Anderson Cancer Center have joined the organization’s growing membership in its … opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution …

The Radiosurgery Society® Announces the Newest Members of its RSS Sponsorship Alliance | 4/29/2020

… medical society dedicated to advancing the science and clinical practice of radiosurgery, today announced that NYU Langone Hospitals and The University of Texas MD Anderson Cancer Center have joined the organization’s growing membership in its … opportunities for collaboration and research through participation in the RSSearch® Patient Registry and Clinical Research Committee, along with access to educational resources and online communities. The RSS offers opportunities for Continuing Education for their institution …

Medical Center

Feinstein Institutes to Collect COVID-19 Patient Plasma, Research Antibodies Therapy | Business Wire | 4/10/2020

… and currently be symptom free. If interested in donating, patients can register their names at the Feinstein Institutes’ Convalescent Coronavirus Patient Registry . Participants will then be referred for plasma collection at a New York Blood … at North Shore University Hospital (NSUH) or Long Island Jewish Medical Center (LIJ), in hopes the infused antibodies will ward off infection. Additional Northwell Health hospitals will be able to administer plasma in the near …

Duke Clinical Research Institute to Expedite Study of COVID-19 Prevention in Healthcare Workers | PR Newswire | 4/1/2020

… need for speed cannot be overstated, and it’s heartening to see the dedication being poured into this effort.” Currier is Professor of Medicine and Chief of the Division of Infectious Diseases at UCLA Medical Center, Santa Monica. Rothman is Senior Vice President for Population and Public Health at Vanderbilt University Medical Center and Ingram Professor of Integrative and Population Health in the Vanderbilt University School of Medicine. The HERO program …

University Medical Center

Duke Clinical Research Institute to Expedite Study of COVID-19 Prevention in Healthcare Workers | PR Newswire | 4/1/2020

… this effort.” Currier is Professor of Medicine and Chief of the Division of Infectious Diseases at UCLA Medical Center, Santa Monica. Rothman is Senior Vice President for Population and Public Health at Vanderbilt University Medical Center and Ingram Professor of Integrative and Population Health in the Vanderbilt University School of Medicine. The HERO program will initially consist of two parts, a national registry and a randomized clinical trial. The registry …

Immunocore and Pulse Infoframe, Inc. Partner with Leading Academic Institutions to Launch First Global Patient Registry for Uveal Melanoma | Business & Finance | heraldchronicle.com | Business Wire | 7/18/2019

Spring Has Sprung Photo AP Immunocore and Pulse Infoframe, Inc. Partner with Leading Academic Institutions to Launch First Global Patient Registry for Uveal Melanoma Jul 18, 2019 Save OXFORD, England & CONSHOHOCKEN, Pa. & ROCKVILLE, Md. & ONTARIO … Experimental Therapeutics and Director of the Melanoma Service at Columbia University Medical Center, Columbia University, US Joseph Sacco, PhD, Clinical Senior Lecturer at the University of Liverpool and Honorary Consultant in Medical Oncology at Clatterbridge …

Vanderbilt University Medical Center

Goldfinch Bio Announces Collaborations With Icahn School Of Medicine At Mount Sinai And Vanderbilt University Medical Center To Augment World’s Largest Genomic Registry Of Patients With Kidney Disease - TheStreet | 10/17/2017

Vanderbilt University Medical Center to generate genomic data on over 1,500 patients with proteinuric kidney disease. The collaborations will integrate genomic analysis and de-identified clinical data from Mount Sinai’s BioMe BioBank and Vanderbilt’s BioVU BioBank to expand Goldfinch’s Patient Registry, generating an unparalleled collection of insights from patients with kidney disease. Goldfinch Bio is leading a new age of therapeutic discovery and development in the kidney space, and is …

Goldfinch Bio Announces Collaborations with Icahn School of Medicine at Mount Sinai and Vanderbilt University Medical Center to Augment World’s Largest Genomic Registry of Patients with Kidney Disease | PR Newswire | 10/17/2017

Goldfinch Bio Announces Collaborations with Icahn School of Medicine at Mount Sinai and Vanderbilt University Medical Center to Augment World’s Largest Genomic Registry of Patients with Kidney Disease News provided by 07:30 ET Share this … Sinai’s BioMe BioBank and Vanderbilt’s BioVU BioBank to expand Goldfinch’s Patient Registry, generating an unparalleled collection of insights from patients with kidney disease. Goldfinch Bio is leading a new age of therapeutic discovery and development …

Greg Felix

Accela Partners with NCS Analytics to Create Next-Generation End-to-End Cannabis Regulatory System | PR Newswire | 12/10/2019

patient registry all in one solution for state and local governments. “NCS’s advanced algorithms will provide agencies with the unparalleled insight they need to keep pace with rapidly evolving and complex regulations, and succeed in a challenging but rewarding industry,” said Greg Felix , Accela’s Vice President of Strategic Solutions. “The partnership between Accela and NCS is based on our intentional design, end-to-end integration, workflow optimization, measurable outcomes, and …

Accela Partners with NCS Analytics to Create Next-Generation End-to-End Cannabis Regulatory System | News | wfmz.com | 12/10/2019

patient registry all in one solution for state and local governments. “NCS’s advanced algorithms will provide agencies with the unparalleled insight they need to keep pace with rapidly evolving and complex regulations, and succeed in a challenging but rewarding industry,” said Greg Felix , Accela’s Vice President of Strategic Solutions. “The partnership between Accela and NCS is based on our intentional design, end-to-end integration, workflow optimization, measurable outcomes, and …

David Lynch

The Friedreich’s Ataxia Research Alliance Promotes Jennifer Farmer, MS to Chief Executive Officer | Globe Newswire | 12/5/2019

… David Lynch’s FA clinic at the Children’s Hospital of Philadelphia. In these earlier roles, she was directly involved in the establishment of the Collaborative Clinical Research Network in FA, the creation of the FA Patient Registry, and managed FARA’s growing grant program. ABOUT FARA The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading …

The Friedreich’s Ataxia Research Alliance Promotes Jennifer Farmer, MS to Chief Executive Officer | Markets Insider | Business Insider | 12/5/2019

… David Lynch’s FA clinic at the Children’s Hospital of Philadelphia. In these earlier roles, she was directly involved in the establishment of the Collaborative Clinical Research Network in FA, the creation of the FA Patient Registry, and managed FARA’s growing grant program. ABOUT FARA The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading …

Fernando Martinez

NIH Awards Major Grant In Pulmonary Fibrosis Research | Markets Insider | Business Insider | 11/4/2019

… and analyze patients’ precise genetic and molecular differences, offer new hope for IPF patients. Led by co-principal investigators Dr. Fernando Martinez and Dr. Imre Noth , the PRECISIONS ( P rospective t R eatment E ffi … toward precision medicine would not be possible without the PFF Patient Registry and Biorepository, which has enrolled more than 2,000 patients with a diverse range of PF disorders at 42 Care Center Network sites nationwide …

NIH Awards Major Grant In Pulmonary Fibrosis Research | PR Newswire | 11/4/2019

… and analyze patients’ precise genetic and molecular differences, offer new hope for IPF patients. Led by co-principal investigators Dr. Fernando Martinez and Dr. Imre Noth , the PRECISIONS ( P rospective t R eatment E ffi … toward precision medicine would not be possible without the PFF Patient Registry and Biorepository, which has enrolled more than 2,000 patients with a diverse range of PF disorders at 42 Care Center Network sites nationwide …

Bell Nunnally

Dallas/Fort Worth To Demand Better For Patients, Survival At PurpleStride, The Walk To End Pancreatic Cancer | PR Newswire | 11/1/2019

… the world’s toughest cancer, at PurpleStride DFW on Saturday, Nov. 9 at Klyde Warren Park. The community event presented by Bell Nunnally is hosted by the Pancreatic Cancer Action Network (PanCAN) DFW Affiliate. Join the … Your Tumor ® , Precision Promise SM , Clinical Trial Finder and the Patient Registry . Katy Palasek , chair of the PanCAN DFW Affiliate, lost both her mother and grandmother to pancreatic cancer. Her grandmother passed after a three …

Dallas-Fort Worth To Demand Better For Patients, Survival At PurpleStride, The Walk To End Pancreatic Cancer | PR Newswire | 10/25/2017

… end pancreatic cancer, the world’s toughest cancer, at PurpleStride Dallas-Fort Worth on Nov. 11 . The community event presented by Bell Nunnally & Martin LLP is hosted by the Pancreatic Cancer Action Network (PanCAN) Dallas-Fort … Your Tumor ® , Precision Promise SM , Clinical Trial Finder and the Patient Registry . Harley Sterns , a pancreatic cancer survivor, has made it his personal mission to improve patient outcomes since joining the local affiliate in November …

Kathy Giusti

New MMRF Patient Registry Aims to Help Develop Personalized Treatments for Multiple Myeloma | 10/14/2019

… the lack of an easily accessible platform. The MMRF created the DTP Registry to fill in this gap. “Patients understand that there is an urgent need for more people to donate their data,” Kathy Giusti, MMRF’s founder and chief mission officer, and herself a multiple myeloma patient, said in a press release . “This understanding led me to be among the first patients to share my data, and the hope is …

Multiple Myeloma Research Foundation (MMRF) Launches Groundbreaking Direct-to-Patient Registry | 10/10/2019

… make data sharing easy, which will ultimately accelerate personalized treatments through the insights the data will provide. “Patients understand that there is an urgent need for more people to donate their data,” said Kathy Giusti, Founder and Chief Mission Officer of the MMRF. “This understanding led me to be among the first patients to share my data, and the hope is that, through this revolutionary initiative, we continue to break …

Anand Mahadevan

RSSearch® Patient Registry Surpasses 25,000 Patient Cases Using Stereotactic Body Radiotherapy/Stereotactic Radiosurgery | PRWeb | 9/13/2019

RSSearch® Patient Registry Surpasses 25,000 Patient Cases Using Stereotactic Body Radiotherapy/Stereotactic Radiosurgery Share Article The RSSearch Registry – led by the Radiosurgery Society – is the largest and most robust live database of its kind in … by the significant outcome studies published from this data,” stated Anand Mahadevan, MD. SAN MATEO, Calif. The Radiosurgery Society (RSS), a non-profit organization of medical professionals dedicated to advancing the science and clinical practice …

RSSearch® Patient Registry Surpasses 25,000 Patient Cases Using Stereotactic Body Radiotherapy/Stereotactic Radiosurgery | Markets Insider | Business Insider | 9/13/2019

… to advancing the science and clinical practice of stereotactic body radiotherapy (SBRT) and radiosurgery (SRS), announced today that its RSSearch® Patient Registry has surpassed 25,000 patient cases treated with SRS/SBRT. The breadth of patient … providers on the usefulness of SBRT in difficult situations,” stated Anand Mahadevan , MD, Professor and Chairman, Radiation Oncology at Geisinger Health, Geisinger Cancer Institute, Danville, PA. The RSSearch Patient Registry is an observational registry established …

Julie Fleshman

PurpleStride®, The Walk To End Pancreatic Cancer, Returns To Chicago On June 29 | PR Newswire | 6/20/2019

Patient Registry . Julie Fleshman , JD, MBA, president and CEO of PanCAN, urges those in the Chicago area to lace up their walking shoes and join PurpleStride to save lives and double pancreatic cancer survival. “It’s a truly special moment when we are able to recognize the pancreatic cancer survivors in attendance at the event and cheer them on as they cross the walk’s finish line,” Fleshman said. “By raising funds …

Pancreatic Cancer Remains The Deadliest Major Cancer In The United States | PR Newswire | 1/4/2018

… sons, colleagues and friends – will be diagnosed with the disease this year and more than 44,000 people will die,” said Julie Fleshman , JD, MBA , president & CEO of the Pancreatic Cancer Action Network (PanCAN). “There remains … trial database in the United States ; as well as the Patient Registry, a global database of patient information to help advance research and improve patient care. In addition, since 2003, PanCAN has awarded 159 grants …

Peter Cashion

Peter Cashion Joins The Pancreatic Cancer Action Network Board Of Directors | PR Newswire | 12/12/2017

Peter Cashion Joins The Pancreatic Cancer Action Network Board Of Directors News provided by 05:00 ET Share this article MANHATTAN BEACH, Calif. , Dec. 12, 2017 /PRNewswire-USNewswire/ – The Pancreatic Cancer Action Network (PanCAN) is proud … initiatives, including Precision Promise SM , Know Your Tumor ® and the Patient Registry . Support the Pancreatic Cancer Action Network’s urgent goal to double survival by 2020 . Follow the Pancreatic Cancer Action Network on Twitter , Instagram and …

Peter Cashion Joins The Pancreatic Cancer Action Network Board Of Directors | PR Newswire | 12/12/2017

MANHATTAN BEACH, Calif. , Dec. 12, 2017 /PRNewswire-USNewswire/ – The Pancreatic Cancer Action Network (PanCAN) is proud to announce that Peter Cashion , MBA , has been elected to its Board of Directors. In his new leadership role … initiatives, including Precision Promise SM , Know Your Tumor ® and the Patient Registry . Support the Pancreatic Cancer Action Network’s urgent goal to double survival by 2020 . Follow the Pancreatic Cancer Action Network on Twitter , Instagram and …