Patient-Centered Research

Selected news for the healthcare topic - Patient-Centered Research, collected since 10/2017. This healthcare topic shares news with Clinical Research, Patient Community, COVID-19 and many others.

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9/27/2021 SLH's Clinical Health educates public on research and COVID-19 northcountrynow.com ... with the PATIENTS Program at the University of Maryland School of Pharmacy, has successfully completed a two-year project that has provided North Country residents with information on COVID-19 and the importance of patient-centered research .The PATIENTS (PATient-centered Involvement in Evaluating the effectiveNess of TreatmentS) Program is designed to invite patients with any multitude of conditions to get more involved in their health care. They are provided ...
7/22/2021 Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement. Physicians Weekly ... and incorporate these patient-centered outcomes in ILD research. To summarize the current state of patient-centered outcomes research in ILD, identify gaps in knowledge and research, and highlight opportunities and methods for future patient-centered research agendas in ILD. An international interdisciplinary group of experts was assembled. The group identified top patient-centered outcomes in ILD, reviewed available literature for each outcome, highlighted important discoveries and knowledge gaps, and ...
7/22/2021 Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement. | The Doctors Post thedoctorspost.com ... and incorporate these patient-centered outcomes in ILD research. To summarize the current state of patient-centered outcomes research in ILD, identify gaps in knowledge and research, and highlight opportunities and methods for future patient-centered research agendas in ILD. An international interdisciplinary group of experts was assembled. The group identified top patient-centered outcomes in ILD, reviewed available literature for each outcome, highlighted important discoveries and knowledge gaps, and ...
7/22/2021 Dystonia Agenda Takes Center Stage at Child Neurology Society Meeting cprn.org Dystonia Agenda Takes Center Stage at Child Neurology Society Meeting] [Dystonia in Cerebral Palsy patient-centered research agenda] at the [Child Neurology Society] (CNS) meeting in Boston, MA in September 2021. Her talk, entitled, “Top 10 Areas of Research Need for People with Cerebral Palsy and Dystonia: A Novel Community-driven Agenda,” is based on collaborative work she carried out with the Network to engage the community in a ...
7/19/2021 PCORI's Commitment to Advancing Diversity, Equity, and Inclusion pcori.org ... specifically or more often affect women. Learn about our Engagement Awards program and view the announcements of all our open funding opportunities. This on-demand training tool enables those new to health research or patient-centered research to learn more about the research process. Browse this new website that offers resources created to support all members of multi-stakeholder research teams in working together. View and learn about the newly ...
7/16/2021 Using Evidence to Inform Evolving Telehealth Policies nashp.org ... has been a significant shift for some states. Many state officials are considering if and how to adapt rapidly implemented telehealth policies as the nation emerges from the public health emergency. Existing and emerging patient-centered research can help inform these important decisions. There have been a number of changes rapidly adopted under Medicaid and CHIP emergency authorities to ensure safe access to care while limiting further spread of COVID ...
7/7/2021 The Patient Centered Outcomes Research Institute Awards $259 Million in Comparative Effectiveness Research Projects, New Principles Include Utilizing RWD and Improving Equity healtheconomics.com The Patient Centered Outcomes Research Institute (PCORI) was established more than a decade ago to improve patient-centered research . The institute provides broad funding awards as well as targeted awards. Its $259 million in comparative effectiveness funding constitutes an 80% funding rate. It recently published several proposed principles, including improving equity in healthcare and supporting the use of real world data (RWD). “Since its inception, the Institute has awarded over ...
6/18/2021 Public health professor awarded $250,000 grant for sickle cell research georgiasouthern.edu Public health professor awarded $250,000 grant for sickle cell research Tilicia Mayo-Gamble, Ph.D., has been awarded a $250,000 Patient-Centered Outcomes Research Institute grant for her project, “Capacity Building to Create a Patient-Centered Research Dissemination Model.” Mayo-Gamble will use the grant to work with sickle cell patients to increase knowledge and awareness of useful interventions on chronic disease management; increase their recognition of their role in ...
6/9/2021 Real-world patient experience and treatment preferences in patients with psoriatic arthritis rtihs.org ... survey was developed, informed by published literature and treatment guidelines, expert clinical opinion, and cognitive debriefing interviews with PsA patients. Adults with a self-reported diagnosis of PsA were recruited from a US rheumatology patient-centered research registry and other online patient communities. Object case best-worst scaling (BWS) was used to evaluate the relative burden of 11 PsA-related symptoms and the relative importance of improvement in 9 PsA ...
3/18/2021 Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research pcori.org ... that can inform future work in patient-centered outcomes research. Learn about our Engagement Awards program and view the announcements of all our open funding opportunities. It enables those new to health research or patient-centered research to learn more about the research process. View and learn about the newly opened funding announcements and the upcoming PFAs in 2021. Find out what PCORI looks for in a letter of intent ...
3/4/2021 Register Today for Virtual ISPOR 2021 Conference on HEOR, HTAs, and RWD healtheconomics.com ... May 17-20. The theme of this year’s conference is: HEOR: Evolving for Tomorrow’s Challenges. Register today to attend important sessions on RWD (real world data), study design, HTAs (health technology assessments), and patient-centered research . The four-day conference includes three plenary sessions, talks from HEOR experts, and networking opportunities.“This must-attend event provides you with dedicated opportunities to network with your peers, HEOR experts, and thought ...
11/18/2020 National Diabetes Month shines spotlight on importance of education, support psu.edu ... with it,” said Evans, who was diagnosed with type 2 diabetes when she was in her mid-20s and with multiple sclerosis a decade later.Evans is a “patient partner,” enrolled in patient-centered research studies at Penn State College of Medicine for more than four years – specifically one that looks at effectiveness of counseling in improving weight loss for adults with or at high risk for ...
10/23/2020 #BCSM helps physicians understand patients' needs outside the clinical setting labroots.com WRITTEN BY: Kathryn DeMuth SullivanA new study from UCLA published in the Journal of Patient-Centered Research and Review suggests that social media can be a positive resource about cancer information for patients, physicians, and researchers. The study reviewed social media posts from the last nine years with the BCSM, standing for breast cancer social media, which first surfaced on Twitter in 2011."We physicians have a lot to ...
10/21/2020 Atrium Health, Wake Forest Baptist Health merge averyjournal.com ... renowned for their clinical expertise and the school of medicine is nationally recognized for its medical education programs and research. With the strategic combination now complete, the collective vision to transform medical education, expand patient-centered research and innovation, and define the next generation of clinical excellence becomes a reality.The new Atrium Health enterprise will bring clinical expertise together with the research, innovation and the educational capabilities of these ...
10/9/2020 Atrium Health and Wake Forest Baptist Health Combine, Create Next-Generation Academic Health System PR Newswire ... renowned for their clinical expertise and the school of medicine is nationally recognized for its medical education programs and research. With the strategic combination now complete, the collective vision to transform medical education, expand patient-centered research and innovation, and define the next generation of clinical excellence becomes a reality.(PRNewsfoto/Wake Forest Baptist Health) (PRNewsfoto/Wake Forest University) The new Atrium Health enterprise will bring clinical expertise together with ...
9/16/2020 COVID-19, Racism in Health Care and Engaging Patients in Health Research Highlight PCORI Annual Meeting BioSpace ... clinical research enterprise. Opening keynote speaker Liz Salmi , brain cancer survivor and co-leader of the Brain Cancer Quality of Life Collaborative, shares her inspiring journey from curious patient to co-investigator engaged in patient-centered research . Following her address, the PCORI Virtual Annual Meeting explores some of the timeliest topics in today's clinical research landscape, including COVID-19-related research, telehealth, health and health care disparities and inequities, maternal ...
9/16/2020 COVID-19, racism in health care and engaging patients in health research highlight PCORI Annual Meeting pressreleasepoint.com ... Opening Keynote Speaker Opening keynote speaker Liz Salmi, brain cancer survivor and co-leader of the Brain Cancer Quality of Life Collaborative, shares her inspiring journey from curious patient to co-investigator engaged in patient-centered research . Following her address, the PCORI Virtual Annual Meeting explores some of the timeliest topics in today’s clinical research landscape, including COVID-19-related research, telehealth, health and health care disparities and inequities, maternal ...
9/7/2020 Factors associated with fear of hypoglycaemia among the T1D Exchange Glu population in a cross-sectional online survey BMJ Diabetes and endocrinology Original research Factors associated with fear of hypoglycaemia among the T1D Exchange Glu population in a cross-sectional online survey 1 Patient-Centered Research , T1D Exchange , Boston , Massachusetts , USA 2 Lilly Diabetes , Eli Lilly and Company , Indianapolis , Indiana , USA Correspondence to Beth Mitchell; mitchellbethd(at)lilly.com Abstract Objectives Fear of hypoglycaemia (FoH) has been associated with suboptimal diabetes management and health outcomes. This study investigated ...
9/4/2020 With Dr. Robert Dubois at the Helm, the National Pharmaceutical Council (NPC) Solidifies Commitment to High-Quality Patient-Centered Research and Evidence-based Dialogue healtheconomics.com Dr. Robert Dubois, the newly appointed interim president and CEO of NPC, outlined his vision for the organization during his tenure. Dr. Dubois emphasized his intention to focus on two key issues moving forward: 1) building on the work that NPC has been doing in fostering an evidence-based dialogue; and 2) positioning NPC for the future–no matter what the issues are–over the next one, five, or ten ...
9/3/2020 CreakyJoints Presents Tumbler and Tipsy by Michael Kuluva Virtual Presentation of the Spring/Summer 2021 Collection During New York Fashion Week Business Wire ... and it’s a representation of a lifestyle: fun, bold, luxurious and daring. www.tumblerandtipsy.com About CreakyJoints® CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research . We represent patients in English and Spanish through our popular social media channels, our websites www.CreakyJoints.org , https://creakyjoints.org.es , www.creakyjoints.org.au , and the 50-State Network , which includes more than 1,500 trained volunteer patient, caregiver ...