Patient-Centered Research

Selected news for the healthcare topic - Patient-Centered Research, collected since 10/2017. Recent stories appear in georgiasouthern.edu and rtihs.org. This healthcare topic shares news with Clinical Research, Patient Community, COVID-19 and many others.

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Date Headline (link) Source Relevant Snippet
6/18/2021 Public health professor awarded $250,000 grant for sickle cell research georgiasouthern.edu Public health professor awarded $250,000 grant for sickle cell research Tilicia Mayo-Gamble, Ph.D., has been awarded a $250,000 Patient-Centered Outcomes Research Institute grant for her project, “Capacity Building to Create a Patient-Centered Research Dissemination Model.” Mayo-Gamble will use the grant to work with sickle cell patients to increase knowledge and awareness of useful interventions on chronic disease management; increase their recognition of their role in ...
6/9/2021 Real-world patient experience and treatment preferences in patients with psoriatic arthritis rtihs.org ... survey was developed, informed by published literature and treatment guidelines, expert clinical opinion, and cognitive debriefing interviews with PsA patients. Adults with a self-reported diagnosis of PsA were recruited from a US rheumatology patient-centered research registry and other online patient communities. Object case best-worst scaling (BWS) was used to evaluate the relative burden of 11 PsA-related symptoms and the relative importance of improvement in 9 PsA ...
3/18/2021 Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research pcori.org ... that can inform future work in patient-centered outcomes research. Learn about our Engagement Awards program and view the announcements of all our open funding opportunities. It enables those new to health research or patient-centered research to learn more about the research process. View and learn about the newly opened funding announcements and the upcoming PFAs in 2021. Find out what PCORI looks for in a letter of intent ...
3/4/2021 Register Today for Virtual ISPOR 2021 Conference on HEOR, HTAs, and RWD healtheconomics.com ... May 17-20. The theme of this year’s conference is: HEOR: Evolving for Tomorrow’s Challenges. Register today to attend important sessions on RWD (real world data), study design, HTAs (health technology assessments), and patient-centered research . The four-day conference includes three plenary sessions, talks from HEOR experts, and networking opportunities.“This must-attend event provides you with dedicated opportunities to network with your peers, HEOR experts, and thought ...
11/18/2020 National Diabetes Month shines spotlight on importance of education, support psu.edu ... with it,” said Evans, who was diagnosed with type 2 diabetes when she was in her mid-20s and with multiple sclerosis a decade later.Evans is a “patient partner,” enrolled in patient-centered research studies at Penn State College of Medicine for more than four years – specifically one that looks at effectiveness of counseling in improving weight loss for adults with or at high risk for ...
10/23/2020 #BCSM helps physicians understand patients' needs outside the clinical setting labroots.com WRITTEN BY: Kathryn DeMuth SullivanA new study from UCLA published in the Journal of Patient-Centered Research and Review suggests that social media can be a positive resource about cancer information for patients, physicians, and researchers. The study reviewed social media posts from the last nine years with the BCSM, standing for breast cancer social media, which first surfaced on Twitter in 2011."We physicians have a lot to ...
10/21/2020 Atrium Health, Wake Forest Baptist Health merge averyjournal.com ... renowned for their clinical expertise and the school of medicine is nationally recognized for its medical education programs and research. With the strategic combination now complete, the collective vision to transform medical education, expand patient-centered research and innovation, and define the next generation of clinical excellence becomes a reality.The new Atrium Health enterprise will bring clinical expertise together with the research, innovation and the educational capabilities of these ...
10/9/2020 Atrium Health and Wake Forest Baptist Health Combine, Create Next-Generation Academic Health System PR Newswire ... renowned for their clinical expertise and the school of medicine is nationally recognized for its medical education programs and research. With the strategic combination now complete, the collective vision to transform medical education, expand patient-centered research and innovation, and define the next generation of clinical excellence becomes a reality.(PRNewsfoto/Wake Forest Baptist Health) (PRNewsfoto/Wake Forest University) The new Atrium Health enterprise will bring clinical expertise together with ...
9/16/2020 COVID-19, Racism in Health Care and Engaging Patients in Health Research Highlight PCORI Annual Meeting BioSpace ... clinical research enterprise. Opening keynote speaker Liz Salmi , brain cancer survivor and co-leader of the Brain Cancer Quality of Life Collaborative, shares her inspiring journey from curious patient to co-investigator engaged in patient-centered research . Following her address, the PCORI Virtual Annual Meeting explores some of the timeliest topics in today's clinical research landscape, including COVID-19-related research, telehealth, health and health care disparities and inequities, maternal ...
9/16/2020 COVID-19, racism in health care and engaging patients in health research highlight PCORI Annual Meeting pressreleasepoint.com ... Opening Keynote Speaker Opening keynote speaker Liz Salmi, brain cancer survivor and co-leader of the Brain Cancer Quality of Life Collaborative, shares her inspiring journey from curious patient to co-investigator engaged in patient-centered research . Following her address, the PCORI Virtual Annual Meeting explores some of the timeliest topics in today’s clinical research landscape, including COVID-19-related research, telehealth, health and health care disparities and inequities, maternal ...
9/7/2020 Factors associated with fear of hypoglycaemia among the T1D Exchange Glu population in a cross-sectional online survey BMJ Diabetes and endocrinology Original research Factors associated with fear of hypoglycaemia among the T1D Exchange Glu population in a cross-sectional online survey 1 Patient-Centered Research , T1D Exchange , Boston , Massachusetts , USA 2 Lilly Diabetes , Eli Lilly and Company , Indianapolis , Indiana , USA Correspondence to Beth Mitchell; mitchellbethd(at)lilly.com Abstract Objectives Fear of hypoglycaemia (FoH) has been associated with suboptimal diabetes management and health outcomes. This study investigated ...
9/4/2020 With Dr. Robert Dubois at the Helm, the National Pharmaceutical Council (NPC) Solidifies Commitment to High-Quality Patient-Centered Research and Evidence-based Dialogue healtheconomics.com Dr. Robert Dubois, the newly appointed interim president and CEO of NPC, outlined his vision for the organization during his tenure. Dr. Dubois emphasized his intention to focus on two key issues moving forward: 1) building on the work that NPC has been doing in fostering an evidence-based dialogue; and 2) positioning NPC for the future–no matter what the issues are–over the next one, five, or ten ...
9/3/2020 CreakyJoints Presents Tumbler and Tipsy by Michael Kuluva Virtual Presentation of the Spring/Summer 2021 Collection During New York Fashion Week Business Wire ... and it’s a representation of a lifestyle: fun, bold, luxurious and daring. www.tumblerandtipsy.com About CreakyJoints® CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research . We represent patients in English and Spanish through our popular social media channels, our websites www.CreakyJoints.org , https://creakyjoints.org.es , www.creakyjoints.org.au , and the 50-State Network , which includes more than 1,500 trained volunteer patient, caregiver ...
9/3/2020 CreakyJoints Presents Tumbler and Tipsy by Michael Kuluva Virtual Presentation of the Spring/Summer 2021 Collection During New York Fashion Week | Business & Finance | manchestertimes.com Business Wire ... and it’s a representation of a lifestyle: fun, bold, luxurious and daring. www.tumblerandtipsy.com About CreakyJoints® CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research . We represent patients in English and Spanish through our popular social media channels, our websites www.CreakyJoints.org , https://creakyjoints.org.es , www.creakyjoints.org.au , and the 50-State Network , which includes more than 1,500 trained volunteer patient, caregiver ...
9/2/2020 The AAKOMA Project, Inc 2020 Kickoff Fundraiser | Created by Alfiee Breland-Noble gofundme.com ... to go for help ● supporting friends and loved ones to seek help Since the stigma associated with mental health care often begins early, we work with teenagers and their families to raise awareness, conduct patient-centered research , and encourage young people to begin conversations in their communities. We bring a special focus on the unique experiences of people of color and marginalized communities. As a result, we are able to ...
9/1/2020 Walgreens Introduces Owned Brand Arthritis Pain Relief Gel Alongside Personalized Pain Management Support Business Wire ... a staunch advocate for vaccines. The Global Healthy Living Foundation is the parent organization of CreakyJoints ®, the digital arthritis community for millions of arthritis patients and caregivers worldwide who seek education, support, activism and patient-centered research through ArthritisPower ® (ArthritisPower.org), the first ever patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions. GHLF also hosts PainSpot (PainSpot.org), a digital risk assessment tool for musculoskeletal conditions and ...
8/27/2020 CPRN Turns Five! cprn.org ... outcomes for people with CP. A 5-year strategic plan created in 2016 led to the realization of the following major milestones: Engagement of community, clinical and research stakeholders to set and prioritize a patient-centered research agenda . The engagement was accomplished through the establishment of a Community Advisory Committee and the execution of two patient-centered research setting initiatives called Research CP , the first of which was funded by ...
8/23/2020 Patient Family Advisors. Back 2 Basics health-hats.com ... panels since then, some window dressing, some meaningful. Introducing James Harrison I invited James Harrison to join us to talk about his study of patient family advisors. James and I met through PCORI (the Patient-Centered Research Outcomes institute). Our favorite topics include making health choices and engagement of academia and hospitals with patient family advisors. Our mutual favorite questions: So what? Does it matter? Is it meaningful? Who does ...
8/22/2020 New Research Agenda Seeks to Usher in New Era of Patient-centered Personalized Medicine. healtheconomics.com The Personalized Medicine Coalition (PMC) released a new patient-centered research agenda for personalized medicine defining 45 research questions across nine patient-identified areas of special concern. The research questions specifically address concerns related to: Caregiver, pediatric and family considerations; Provider education, resources and collaboration; Access, affordability and utilization; New technologies and data management; and Outcomes research. The report is the result of two years of discussions with over 120 ...
8/21/2020 New Patient-Centered Research Agenda for Personalized Medicine Outlines 45 Questions Across Nine Areas With Emphasis on Improving Education, Access PR Newswire WASHINGTON Following two years of discussions with more than 120 health care stakeholders comprised predominantly of patients, caregivers and representatives from patient advocacy organizations, the Personalized Medicine Coalition is pleased to release a new patient-centered research agenda for personalized medicine that defines 45 research questions for the field across nine areas of special concern for patients themselves. By aligning the focus of future research in the field with questions ...