Online Patient Communities

Can Community Be a Medicine? | 7/27/2020

… logistic, emotional and even financial support for a lifetime. This incredible group of islanders certainly fit the definition of a caring community with a sense of belonging. What if moai concept was replicated in online patient communities ? Growth Mindset Let’s now look at forming sustainable community practices to achieve long lasting habits. One of the hardest things to change is our behaviors and our overall lifestyle. We all know that …

Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study | 4/1/2020

… community users. Theoretical and Practical Significance The information-sharing intention model established in this study enriches and improves theoretical knowledge in the following aspects. Primarily, utility theory was applied to study users’ WSI in online patient communities. Previous studies on users’ willingness to share have mainly focused on aspects of motivation, mutual benefits, social exchange, and the like. Yet, by combining the features of users’ information sharing in online patient …

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Opinion: People with serious illness can teach us a lot about living with Covid-19 | STAT | 3/24/2020

… email, and embrace the opportunity to connect in new ways. People with chronic and advanced illness face accessibility and financial obstacles to attending conferences or even meeting like-minded individuals, but rather than fold, online patient communities are driving large conferences to beef up their social media presences. We are skilled at maximizing value in online spaces. People with serious illness can help unlock the power of virtual resources. Covid …

Successful Moderation in Online Patient Communities: Inductive Case Study | 3/17/2020

… read commentaries and experiences about health issues; and consult reviews and rankings of treatments, doctors, and hospitals [ 1 - 4 ]. According to a 2013 study, 72% of internet users looked at health information online [ 5 ]. Online patient communities are becoming forums for patients to share their stories, gain peer support, and search for medical information [ 6 , 7 ]. Studies have shown that membership in patient communities is associated with better health, behavior …

Patients increasingly use online info to make suggestions to their care plans, report finds | Becker’s Hospital Review | 10/28/2019

… asked a physician to prescribe or discontinue a specific drug. 3. Sixty-six percent of consumers who searched for providers online selected a provider based on online reviews. 4. Consumers are also turning to online patient communities to connect more outside the traditional patient-physician relationship, with 18 percent of consumers having participated in an online patient community in 2019. To access the full report, click here . More articles on …

HEOR Services Outsourced by 75 Percent of Top/Mid Pharma, Says Beroe Inc | PR Newswire | 10/4/2019

… CROs are collaborating with data analytics service providers to provide greater real-world evidence and outcome analytics and some pharma companies directly collaborating with data analytics firms for predictive analytics and big data solutions. Online patient communities (OPCs) are emerging as prevalent means to reach out to providers as well as patients resulting in better participation and sharing of information leading to aggregates of information, and depictions of patient data …

Providing Support To Patients Through Online Patient Communities | 6/18/2019

… one of the reasons why physicians should establish their own presence in social media. While we do believe that support groups will continue to be impactful and have their benefits, we also believe that online patient communities are also beneficial and advantageous. One of the reasons why online patient communities offer so many advantages is because many patients and their caregivers are not able to physically attend support groups. Many …

WEGO Health Announces Open Nominations for the Eighth Annual WEGO Health Awards | PRWeb | 6/4/2019

… collaborating with the broader healthcare community on a range of patient-centered initiatives. More than 4,000 patient leaders were nominated in 2018, who in turn garnered more than 33,000 endorsements from their peers in online patient communities . The program has gained widespread recognition globally, as evidenced by the more than 1.7 million people following the WEGO Health Awards Twitter chat in 2018. The personal impact of the WEGO Health Awards …

Grassroots group to fight medical debt collection, surprise bills | Crain’s New York Business | 4/30/2019

… conversation flowing.” The group is still in the early stages of building a following. But other patient communities have become popular. The Paying Till It Hurts group on Facebook has nearly 9,000 members, and online patient communities such as Inspire and PatientsLikeMe have hundreds of thousands of users. Interest in activism could rise as health costs cut into more workers’ paychecks. New York employees contributions to their premiums averaged about …

WEGO Health Releases Report on Patient Influencer Perspectives on Social Media | PRWeb | 4/16/2019

… has published the first in a series of quarterly reports on how usage patterns are changing among patient influencers who use Facebook, Instagram, Twitter and other social platforms to connect with their peers in online patient communities . The quarterly report, “Patient Influencer Perspectives on Social Media,” provides new data on how patients across a broad range of chronic, complex and rare diseases are using social media in the patient journey …