| 4/6/2022 |
Factors Associated With Lupus Patients Participating in Clinical Trials |
Physicians Weekly |
... albeit the difference was not statistically significant (odds ratio, 1.40; 95% CI, 0.96–2.11). Both demographic (race/ethnicity) and medical (disease severity defined as higher organ involvement) characteristics appear to play a role in clinical trial participation (P 0.05). When the findings of the study and other studies were combined, it gave insight into recruiting techniques for historically underrepresented minorities.Reference: journals.lww.com/jclinrheum/Abstract/2022/04000/FactorsAssociatedWithParticipationin ... |
| 4/6/2022 |
Factors that influence clinical trial participation by patients with cancer in Australia: a scoping review protocol |
BMJ |
quality in health care Strengths and limitations of this study This will be the first scoping review to systematically search factors that influence clinical trial participation by oncology patients in Australia. This protocol outlines a transparent and rigorous study design which follows an established scoping review methodology. A thorough strategy was developed in consultation with an experienced medical librarian with validation from content experts. This review protocol will ensure a ... |
| 3/16/2022 |
Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers |
survivingmesothelioma.com |
... result of the number of clinical trials available to patients. Yet, little is known about patients’ and relatives’ feelings about trial participation.A new study provides insight into people’s experiences of clinical trial participation . They also report what factors influence decision-making.Scientists interviewed twelve people, comprising five mesothelioma patients and seven relatives. They identified four themes related to the experience of mesothelioma.First, is the physicality ... |
| 3/10/2022 |
Lay Health Worker–Led Intervention May Improve Care for Low-Income and Minority Patients With Cancer - The ASCO Post |
ascopost.com |
... AdvertisementIn a study reported in JCO Oncology Practice , Manali I. Patel, MD, MPH , and colleagues found that a lay health worker­–led intervention was associated with improved documentation of goals of care, increased clinical trial participation , and increased use of palliative care in a population of predominantly minority and low-income adults with cancer.Manali I. Patel, MD, MPHAs stated by the investigators, “New approaches are needed to ... |
| 3/7/2022 |
Clinical Trials Substantially Underrepresent Ethnic and Racial Minorities Leading to Negative Impacts on Patients | Business Wire |
Business Wire |
... a limit in understanding how studies will translate into the real world.Although over 40% of the U.S. population is comprised of ethnic and racial minorities, just five to ten percent are represented in clinical trial participation ; a significant disproportion of this community. Despite pharmaceutical companies and sponsors of clinical trials increasing their focus to diversify trials, it remains a challenge for the healthcare industry. Diversity in Clinical Trials Participation ... |
| 3/7/2022 |
Clinical Trials Substantially Underrepresent Ethnic and Racial Minorities Leading to Negative Impacts on Patients |
Yahoo News |
... a limit in understanding how studies will translate into the real world.Although over 40% of the U.S. population is comprised of ethnic and racial minorities, just five to ten percent are represented in clinical trial participation ; a significant disproportion of this community. Despite pharmaceutical companies and sponsors of clinical trials increasing their focus to diversify trials, it remains a challenge for the healthcare industry. Diversity in Clinical Trials Participation ... |
| 3/7/2022 |
Clinical Trials Substantially Underrepresent Ethnic and Racial Minorities Leading to Negative Impacts on Patients |
Business Wire |
... a limit in understanding how studies will translate into the real world.Although over 40% of the U.S. population is comprised of ethnic and racial minorities, just five to ten percent are represented in clinical trial participation ; a significant disproportion of this community. Despite pharmaceutical companies and sponsors of clinical trials increasing their focus to diversify trials, it remains a challenge for the healthcare industry. Diversity in Clinical Trials Participation ... |
| 3/3/2022 |
Perceptions Facilitate, Prohibit Clinical Trial Participation by African American Patients |
oncologynurseadvisor.com |
... leader from a local nonprofit organization that provides support to cancer survivors. They used Freire’s dialogic model to guide the interviews.Continue ReadingAnalysis of the data collected revealed 3 themes related to clinical trial participation:- Facilitators of participants Participants discussed the influence of support from friends, their religious faith, and their own self-advocacy.- Barriers to participation Racism, media, and social determinants of health were all cited by ... |
| 3/1/2022 |
SEQSTER JOINS DECENTRALIZED TRIALS & RESEARCH ALLIANCE (DTRA) TO DEMOCRATIZE AND ACCELERATE CLINICAL TRIALS |
PR Newswire |
... adoption of patient-focused, decentralized clinical trials and research. The Decentralized Trials & Research Alliance ( DTRA ), is uniting industry stakeholders, including healthcare companies, regulators, patient groups and research organizations with a singular mission to make clinical trial participation widely accessible by advancing policies, research practices and new technologies in decentralized clinical research.Seqster Joins Decentralized Trials and Research Alliance to power the ecosystem with its operating system "Seqster breaks down health ... |
| 3/1/2022 |
TOUCH, The Black Breast Cancer Alliance, and Breastcancer.org lead unprecedented When We Tri(al) movement to address breast cancer clinical trial disparities |
PR Newswire |
WASHINGTON , March TOUCH, The Black Breast Cancer Alliance and Breastcancer.org are bringing together partners from all corners of healthcare to disrupt the status quo for Black women's clinical trial participation . By applying key insights from original observational research, they are creating compelling and effective messaging to educate Black women about the benefits of joining breast cancer clinical trials and about the safety measures that protect study participants.BCO Logo Black ... |
| 2/22/2022 |
What to expect and why clinical trial participation is safe |
octalkradio.org |
https://www.podbean.com/media/share/pb-fwzfk-11a9291Tori Larrick, Patient Service Manager with the Pancreatic Cancer Action Network guides us through clinical trials, what to expect and why clinical trial participation is safe. Tori encourages anyone considering clinical trials to feel comfortable with reaching out to Patient Services and asking questions. The first step is to feel free to contact PanCAN Patient Services. They’re happy to talk through any ... |
| 2/15/2022 |
A Conundrum of Trust: Addressing the Diversity Gap in Clinical Research |
acrpnet.org |
... African American community, as researchers, we must frame the diversity deficit as nothing less than a scientific crisis. As our industry continues its fight against the pandemic, we must recognize that only through diverse clinical trial participation will the next generation of therapeutics benefit all Americans.Since 2015, our research team has prescreened thousands of patients for clinical trial participation . Over these years, we were able to build a study ... |
| 2/12/2022 |
OHSRP Education Series: Health Literacy Considerations for Clinical Trial Communication |
National Institutes of Health |
... talk will highlight health literacy approaches to enhancing clinical trial communications and informed decision making about clinical trial opportunities. Topics that Dr. Langford will discuss include the following: 1. A general conceptual model for clinical trial participation that can be applied to various disease and behavioral contexts 2. Introduce the ASK (Assume, Seek, Know) approach for enhancing clinical trial participation : • Assume that all patients will want to know their ... |
| 2/7/2022 |
Medable and CVS Health Announce Collaboration to Expand Clinical Trial Access | Business Wire |
Business Wire |
... studies. Additionally, 30 percent of participants drop out before study completion, and 80 percent of studies do not meet enrollment deadlines. While industry efforts are making progress in closing the gap in African-American clinical trial participation , Asian, Hispanic and Latino groups also continue to be significantly and consistently underrepresented .“Our mission is to bring effective therapies to all patients, regardless of where they live, their social status or race ... |
| 2/2/2022 |
Hong Finds Disparities in Clinical Trial Participation in America |
gmu.edu |
... people of low socioeconomic status are less likely to participate in clinical trials. In addition, over the past two decades the internet has reshaped how people seek health information, but it is unknown if clinical trial participation has changed with the rise of the eHealth movement, which has led people to use more telehealth and online health communications.Data from a national representative survey, led by Dr. Alicia Hong , professor ... |
| 2/2/2022 |
Movement Launches to Encourage Black Breast Cancer Trial Participation |
washingtoninformer.com |
The Black Breast Cancer Alliance and Breastcancer.org said they will launch a new movement dedicated to empowering and educating Black women on the importance of clinical trial participation .The When We Tri(al) movement aims to change the devastating breast cancer mortality rates for Black women who now stand at 41% more likely to die from breast cancer than white women.“Black Breast Cancer isn’t about a month, it ... |
| 9/22/2021 |
Janice Krieger Receives $2.1 Million Grant to Use Virtual Human Technology to Promote Clinical Trial Participation Among Older Adult Minorities |
ufl.edu |
Janice Krieger Receives $2.1 Million Grant to Use Virtual Human Technology to Promote Clinical Trial Participation Among Older Adult Minorities Janice Krieger , University of Florida College of Journalism and Communications STEM Translational Communication Center director, and a team of researchers has been awarded a National Institute on Aging (NIA) grant to use the virtual health assistant ALEX (Agent Leveraging Empathy for eXams) to recruit older adult minorities for clinical trials ... |
| 9/10/2021 |
Group Focuses on Rare Disease Clinical Trial Participation |
rettsyndromenews.com |
Group Focuses on Rare Disease Clinical Trial Participation Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running an endurance race they are highly motivated to complete, but these incremental burdens negatively impact their ability or willingness to enroll or remain in clinical trials,” KimberLee Heidmann, vice president of ... |
| 9/10/2021 |
Group Focuses on Rare Disease Clinical Trial Participation |
sclerodermanews.com |
Group Focuses on Rare Disease Clinical Trial Participation Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running an endurance race they are highly motivated to complete, but these incremental burdens negatively impact their ability or willingness to enroll or remain in clinical trials,” KimberLee Heidmann, vice president of ... |
| 9/10/2021 |
Group Focuses on Rare Disease Clinical Trial Participation |
angelmansyndromenews.com |
Group Focuses on Rare Disease Clinical Trial Participation Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running an endurance race they are highly motivated to complete, but these incremental burdens negatively impact their ability or willingness to enroll or remain in clinical trials,” KimberLee Heidmann, vice president of ... |